For wose

M1

I am sorry to see that you have edited out your posts. I hope you did not feel personally attacked, that was no one's intent; I and I am sure others are worried about you and what sounds like a volatile situation. This is such a difficult road under the best of circumstances. Hope you will continue to read and come back.

Mimi50

I noticed wose was gone. I just hope she is okay. Her LO sounds violent really concerned about her getting hurt.

Quilting brings calm

Wose is still a member. Her comments are still there, but her discussions have been editted. Her profile still has a description. The driving discussion may have been a little more than she is able to process right now. Or she may feel she gave us too many details too soon and just wants to dial some of that back. I think she’s overwhelmed with the diagnosis and the symptoms since it’s all so recent. I’m hopeful that she’s reading other discussions, getting some info about reading material, etc. Maybe she will be back once she and her spouse have had their upcoming doctor appointment and gotten some further information about his current condition.

Mimi50

I am in very similar situation with my husband. He has doctors appointment next week. I went to the DMV site in Illinois. There is medical form the doctor has to fill out. Saying it is safe for him to still drive. This way I don’t have to be the bad guy the doctor. Will be the one that will be the bad guy.. We talked last night that I want the doctor to make sure. It is still safe for him to drive. He was fine with that part. When I told that if the doctor says it is not safe. Then he won’t be driving. He tried to argue with me. I simply told him that he had no say in this decision at all. That he can’t determine whether it is safe or not. Only the doctor can. Apparently I am going to need doctor approval too. I am not currently driving. I started having pain behind my eyes. Little trouble leaving my son’s house at night. Not being able to see the steps in the dark. Of course I didn’t say anything. Thinking new glasses would fix the problem. I may have been mistaken in my thinking that would be the case. They wouldn’t dilate my eyes. They want ophthalmologist to do it. Because my eyes are not draining. If there are any complications. During dilation the vision loss. Would be permanent. I feel like I have completely failed my husband. As well as my young adult son. If I can’t drive this means Joshua. Who works full time and has 2 year old baby. Is stuck having to take us places. He already has enough too worry about. So I think that us moving into. The same apartment complex as our son. Might have to happen. Because it is much more walkable. Sorry for the long post.

SSHarkey

https://alzconnected.org/discussion/comment/193478#Comment_193478

Oh Mimi! How difficult for you! Check into the possibility of services for the disabled. Most communities have a bus service for people who cannot drive because of medical conditions. It’s a bit cumbersome but it can certainly help with the situation. You schedule your bus ahead of time. Even our little community has it.

harshedbuzz

@Quilting brings calm

I think you're spot on.

I don't know that she felt the same sense of urgency we do as the result of our own lived experience and reading what has been shared here in the past. I know I personally have anxiety around aggression and do project which is probably not helpful.

For someone new to all this, it must feel like trying to drink from a firehose.

HB

Mimi50

https://alzconnected.org/discussion/comment/193487#Comment_193487

Thank you very much I am doing that.