feeling resentful
Comments
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Hi Ann and welcome to the forum. They say we docs make the worst patients, but this is likely more than that- read about anosognosia. It’s a prominent feature of the disease in which he truly cannot appreciate that he’s impaired. You’re not going to be able to discuss it with him-and many other things also. That is a very hard adjustment as it means you have already lost your partner, and it’s achingly painful. We all understand. This forum has been a great help to me and I hope it will be for you also.
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I stopped being resentful after reading: understanding the dementia experience, available online and on Amazon.
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Of course you feel resentful. It is wicked cruel, what you are going through. We know you will find strength and some positives. With death, there is a recognition of an ending, and support from community. With dementia, we have no ceremony to celebrate the end life as we knew it, no closure. So you can't be a grieving widow/er and then move on. You have to live with your sorrow, and present your loved one with a cheerful countenance, because who wants to spend their last few years or decades in funeral mode.
Reading more about the typical symptoms has definitely helped me. I know now that he is not choosing to rearrange everything in the house just to mess with me; he is trying to help and cannot remember where we keep things. I know that my facial expressions mean more than my words to him, and that my words sound like a word salad to him. We have cried together over what we have lost, but we do that less often now, as we are both adjusting, and forgetting. I repeat to myself daily that I am glad he is still here, and enjoy shared activities and smiles.
There are lots of books. 'What I wish people knew about dementia' by Wendy Mitchell spoke to me. Best of luck.
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The link Marta mentioned. https://www.smashwords.com/extreader/read/210580/1/understanding-the-dementia-experience#hlangandcommun
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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