Confused heartbroken and alone

Toby04

It's heartbroken to watch my mum and best friend disappear in front of my eyes.

I feel angry that I don't know what to do to let her know that I love her with all my heart ♥️

I'm not very good at expressing my feelings I'm scared I would take her place in a heartbeat

Is this normal feelings?

DCCEPEK

@Toby04 welcome you will learn very much about this disease keep reading. There are many here that can help anyway. I will say they all have help me MIL ladder stage 6/7. I understand why I feel like I do.

psg712

Anger, fear, sadness ... yes all are normal in dealing with the loss of a "normal" relationship with someone dear to us. Dementia is a thief. But please know that you are not alone.

catminor

@Toby04 I'm so sorry for what you are going through.

Yes, unfortunately, your feelings are normal. I'm going through it with my Mom too. It's heart breaking, and very challenging to manage all the emotions, especially since it's a roller coaster of feelings from 1 day (sometimes 1 hour) to the next.

I'm new at having a LO with dementia, but I can share with you the one thing that works for me every day. When I'm with my Mom, I hug her, hold her hand, and try to be silly enough to keep us both laughing and smiling. When I'm by myself, I focus on self care, quiet time, and allowing myself to feel all the things I hold in when I'm with my Mom.

You're not alone. We're all just human beings, trying to deal with the reality of this nasty disease stealing our loved ones.

mommyandme (m&m)

Welcome to this place yet so sorry for the reason. Keep coming back to share, vent, question, etc…. This forum helped me survive.

Your feelings, fears and heartbreak etc… are normal even though this disgusting disease is not. After researching a lot and reading here, many of the puzzle pieces will fall in to place although some might forever be lost. We can only do our best during this journey which isn’t perfect. I showed my mom love by hugging, holding and saying I love you. We had our way of laughing at things and I’d try to keep our time light, as I could. When I was on duty (most of the time) I tried to make it all about her…her food, her TV, her music, her comfort… not always perfect.

Again sorry you’re on this path too.

southerngal41

I'm sorry you're here. My LO is in moderate staging and I live in a bordering state visiting when I can. They don't seem to remember how to operate their phone. Along with all the feelings you've mentioned, guilt is mixed in. I joined the ALZ ride challenge for March perhaps as it makes me feel like I'm doing something or fighting it. It hurts as it's totally out of our control.