Article on discrimination against caregivers - Stigma, and worse

ButterflyWings

I have personally experienced this and it is so wrong. As a spouse, the disrespect, stigma and disregarding of my wishes, decisions, and role is like salt rubbed in the wound when my DH cannot advocate for himself and is disregarded as well. PWDs are treated like they have no rights. And their caregivers can experience the same. This must change.

Being attacked in the court system by in-laws and middle-aged step "kids" seeking some monetary benefits is the worst example of this. Not addressed in this article, but the guardianship process seems complicit in disenfranchising both PWDs and their spouses in some cases. I know firsthand. What resources or strategies are there, to protect against this?

https://www.ucl.ac.uk/news/2023/jan/carers-people-living-dementia-experience-discrimination#:~:text=Carers%20of%20people%20living%20with%20dementia%20are%20treated%20negatively%20by,with%20dementia%20also%20become%20stigmatised.

Iris L.

This isn't anything new and has been discussed here for years. These researchers are just learning about the isolation and stresses of caregiving. What are they going to do about it, except more study? They should read "The Calvary Isn't Coming".

Iris

DCCEPEK

@Iris L. I read that one night and love it after I got through kicking and screaming that is. I've not been able to find it since. I totally agree with you it's an eye opener.

fmb

https://alzconnected.org/discussion/comment/198743#Comment_198743

Just bumped "The Cavalry isn't Coming" to the top in the comments.