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Article on discrimination against caregivers - Stigma, and worse

I have personally experienced this and it is so wrong. As a spouse, the disrespect, stigma and disregarding of my wishes, decisions, and role is like salt rubbed in the wound when my DH cannot advocate for himself and is disregarded as well. PWDs are treated like they have no rights. And their caregivers can experience the same. This must change.

Being attacked in the court system by in-laws and middle-aged step "kids" seeking some monetary benefits is the worst example of this. Not addressed in this article, but the guardianship process seems complicit in disenfranchising both PWDs and their spouses in some cases. I know firsthand. What resources or strategies are there, to protect against this?

https://www.ucl.ac.uk/news/2023/jan/carers-people-living-dementia-experience-discrimination#:~:text=Carers%20of%20people%20living%20with%20dementia%20are%20treated%20negatively%20by,with%20dementia%20also%20become%20stigmatised.

Comments

  • Iris L.
    Iris L. Member Posts: 4,362
    Legacy Membership 2500 Comments 500 Likes 250 Care Reactions
    Member

    This isn't anything new and has been discussed here for years. These researchers are just learning about the isolation and stresses of caregiving. What are they going to do about it, except more study? They should read "The Calvary Isn't Coming".

    Iris

  • DCCEPEK
    DCCEPEK Member Posts: 94
    25 Likes 25 Care Reactions 10 Comments First Anniversary
    Member

    @Iris L. I read that one night and love it after I got through kicking and screaming that is. I've not been able to find it since. I totally agree with you it's an eye opener.

  • fmb
    fmb Member Posts: 377
    250 Care Reactions 100 Insightfuls Reactions 100 Likes 100 Comments
    Member

    Just bumped "The Cavalry isn't Coming" to the top in the comments.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more