Leqembi

havrek · February 22

Is anyone using Leqembi and what is your experience?

[email protected] · March 9

DW is into about her 11th infusion. There are two other couples being infused and we have become friends - I understand there will be 2 more leqembi patients soon. We have a follow-up with her neurologist very soon. I hope she tests out 'no change'.

I am seeking caregivers with leqembi patients.i am fairly new with coping, and I would appreciate comments from other caregivers with some or all the symptoms I am experiencing with her. at the risk of sounding harsh, t TIAhose symptoms are heightened paranoia, heightened narcism, hearing conversations that never occurred. There are others, but I would like to hear other caregivers experiencing the same and how you are coping. TIA

Janutt · March 9

Hello,

in my support group there is number of people who are doing the leqembi infusions too. Some are in the early stages of it I guess.

2dogssing · March 15

https://alzconnected.org/discussion/comment/201443#Comment_201443

I'm done with 4th Infusion & had my MRI & I think the report is good. Next week is #5. I notice I want to sleep when I get home after my Infusion. I'm making a conscious effort to drink more water. I have to drink LOTS of water after a massage. I figured it wouldn't hurt to drink a couple extra glasses.

2dogssing · March 16

https://alzconnected.org/discussion/comment/201519#Comment_201519

I have a strong desire to do all I can to fight for my brain. I'm taking Namenda & started Leqembi. I'm trying to exercise & eat healthy. The one thing I noticed after my 1st Infusion was that I felt happier. Perhaps just knowing that I was fighting? I don't know why, but I am so much happier.

Janutt · March 20

That’s exciting to hear that!! Good for you. i hope all things become better for you. I’m glad for everyone who has the opportunity to do this. I have been an avid runner, and alsways did exercise to be has healthy as I could be, but unfortunately this is not the case. I ate very healthy more of a plant based for me. I am the 3rd generation who has this disease. I have early onset.

fjackson · August 28

my husband is going into his 24th infusion. All appears to be going well. I would love to become a part of a care giver support group in sacramento. I have been unable to find such a group. We live downtown. Anyone out there know of a group?

fjackson · August 28

I would love to join a sacramento support group

fjackson · August 28

I am the care giver of a Leqembi patient. I would love to join a group.

rosary50 · August 30

can anyone comment on side effects lequembi infusion? i am early onset and considering infusion treatment

Bobscape · September 6

After the first infusion, I developed flu-like symptoms — shakes, headache, and chills, Lasted about 24-36 hours. The reactions have decreased as the treatment continues. I had my 8th infusion on Monday and the only reaction was a mild headache that was moderated with Tylenol. I have noticed that I have a restless night's sleep the day of the infusion. I've had two MRIs since I started the treatment with a minor brain bleed after the first MRI and none after the second. My doctor at the Mount Sinai Alzheimer's Research Center here in Miami works directly with the infusion center (FloMed). I am very encouraged.

alm6168 · September 7

https://alzconnected.org/discussion/comment/222097#Comment_222097

Hi Bob

I was just diagnosed with AD and in the mild cognitive impairment stage. While I feel comfortable and confident in my physician, I want to get a 2nd opinion or consultation with another medical group. Do you have contact information for the actual medical office at Mt. Siani in Miami (I'm in Palm Beach County) that I can get an appointment. Thanks!