Have any questions about how to use the community? Check out the Help Discussion.

Better Late Than Never

NUMber2
NUMber2 Member Posts: 92
25 Care Reactions 10 Comments 5 Likes
Member

Ok... NOW I completely understand why safety is the #1 concern.

I can't make my LO happy. No place will ever be perfect for her or for me.

She has a lousy disease that makes reasoning with her impossible, even on her good days. I get it now. (It only took me 6 months)

Comments

  • SusanB-dil
    SusanB-dil Member Posts: 1,150
    1000 Comments Third Anniversary 100 Likes 25 Insightfuls Reactions
    Member

    Well, we learn as we go... 'cat'.

    DH and I still end up attempting to reason, or at least explain between ourselves. When we find ourselves doing so, one of us inevitably says 'cat'. Because you can't reason with a cat! You can't reason with PWD. We know not to argue, but once in a while, even though we know better, it is just our nature to try to reason. 'cat'

  • Emily 123
    Emily 123 Member Posts: 782
    Fourth Anniversary 500 Comments 100 Likes 25 Care Reactions
    Member

    Lots of us have been there 🙂

    It takes a while to find your feet when dealing with this disease. The learning curve is steep, and often you have to learn on the fly. Outwardly your person may look and talk to you as they always have.

    It seems like it would be easy to help them from point A to point B during their day, doesn't it? But the disease so distorts and interferes with their thought processes that even simple tasks become challenging and can go awry, and so they become vulnerable all the time.

  • jfkoc
    jfkoc Member Posts: 3,880
    Legacy Membership 2500 Comments 500 Likes 100 Insightfuls Reactions
    Member

    and some days all decisions are a crap shoot!

  • SusanB-dil
    SusanB-dil Member Posts: 1,150
    1000 Comments Third Anniversary 100 Likes 25 Insightfuls Reactions
    Member

    @jfkoc Amen!!!

    Even "good" decisions. They go sideways. they just do. yes, they do.

  • Anonymousjpl123
    Anonymousjpl123 Member Posts: 698
    500 Comments 100 Likes 100 Care Reactions Second Anniversary
    Member

    @NUMber2 you are really sticking through this with a great deal of humility and humanity. Your mom is really lucky to have you, even though I know it doesn’t always feel that way.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more