Does anyone do supplements?
I know supplements are a far reach. If any of them were truly any good, they’d be using them but when you’re desperate, you want to find hope and anything.
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I have a friend whose husband had early onset and was a doctor. They tried everything. At the time, there was some doctor pushing his miracle cure, involving lots of bloodwork and supplements. Long story short, didn’t do anything but take their money.
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@hope111
My dad did IV Thiamine on suspicion of an alcohol-related dementia (Wernicke-Korsakoff's) while in the hospital. Certain people who are heavy drinkers do not absorb the nutrient by mouth or through diet. Tests did confirm a slight deficiency, but they took time to come back from the lab.
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DW diagnosed at age 52 in 2017 pursued the Bredesen protocol, somewhat new at the time and claiming some fantastic results - probably similar to what @SSHarkey referred to. That treatment has faced some harsh criticism more recently from multiple sources, and I would not put faith in it today for claims of halting/reversing alz. The supposed success stories may have been cherry picked, and those who got better maybe were not truly alz in the first place.
They are basically aiming to optimize a whole bunch of measurable things (i.e. by blood tests) using supplements. We gave it a good chance for close to 3 years without the expected result. Physical health awesome; cognitive health continued downward - but hard to draw conclusions because everyone is different. I have some belief that the combination of diet, supplements, very active lifestyle together contributed to slower decline in the early years. It was unsustainable. Meaningful decline eventually began and has accelerated rapidly in the last year. I don't regret trying. If finances were more of a factor, I might think differently but this was not a huge cost compared to memory care.
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The only supplement I recommend is cranberry extract to prevent UTIs. In my experience, my dear wife has not had a UTI since I began giving her one cranberry extract capsule each morning since 2020. This is only anecdotal, but since it is inexpensive I have continued giving it to her. Her doctor agrees.
All the Best,
Bill_2001
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
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AL = Assisted Living
POA = Power of Attorney
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