When do you know it’s time for a Nurologist that’s more knowledgeable on condition

charley0419

I ask this as I read others see different kinds of Nurologists so I guess I asking when is that time? We see a Nurologist regularly so far just short term and confused no driving. Everything else on her own

JDancer

IMHO, it depends on your goal. Do you need additional testing to rule out preventable causes? Do you need medications to control behaviors? Do you have needs unmet by your current physician? If so, see someone more specialized. Otherwise, I personally don't see the point in more doctors.

"On her own," is a good description of my life. Dementia sucks.

mrahope

I would say when there are things that your current doctor will not address that you feel need to be discussed and/or dealt with. My DH was under the care of a neurologist in our old location. That doctor addressed his dementia, while his PCP addressed his other neurological condition (severe Restless Leg Syndrome). When we moved we were hoping to have our new neurologist address both. Unfortunately, the new neurologist didn't seem to want to address DH's dementia and sent us to a geriatric specialist, who was able to do that. The only problem was that it took 3 additional months to see the geriatric specialist! So, my advice would be to decide what your objectives are and what you need to know, then decide if another specialist is needed.

M1

I'm with jdancer on this one—if you have a diagnosis, she is not a candidate for newer medicines (I think I remember you were in a study but stopped) and there are no behavioral issues, you don't necessarily need a neurologist at all. Why pay someone to tell you she's gradually getting worse, which she inevitably will? f she develops behavioral issues you may be better served by a geriatric psychiatrist. Or a good primary care doc if you have one.

Quilting brings calm

our PCP is going to take over what the memory nurse practitioner is doing for my mom. Which is basically just an MMSE test, and a quick check of her balance and a refill of Donepizel. We are keeping the neuropathy neurologist for her legs and feet.

harshedbuzz

@charley0419

What do you want from a neurologist that you aren't getting now?

IME, once you have a firm diagnosis, neurology hasn't much to offer. Often a PCP can manage care going forward. If there are behavior issues, a geripsych is likely a better option than neurology is she needs psychoactive medications.

In terms of progression through the stages, you probably know better where she is in terms of progression since you live with her.

HB