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All I can say is ....

MarDel0917
MarDel0917 Member Posts: 28
10 Comments 25 Care Reactions 5 Insightfuls Reactions
Member
edited May 6 in Caring For a Spouse or Partner

THIS REALLY SUCKS!!!!

I WANNA SCREAM SO LOUD HOW MUCH I HATE SEEING MY KIND, LOVING, BIGGEST HEART OF GOLD WOULD DO ANYTHING FOR ANYONE BF GO THROUGH THIS HORRIBLE DISEASE. HE IS ONLY 44!!!! WHY???? WHY HIM???? WHY ANYONE??? WHY CANT THERE BE A CURE???

SOMEONE SCREAM WITH ME ... PLEASE!!!

We are all in this together 💜

Comments

  • trottingalong
    trottingalong Member Posts: 387
    Eighth Anniversary 100 Care Reactions 100 Likes 100 Comments
    Member

    I would scream along with you, especially knowing a 44 year old has this diagnosis. I’m so sorry for you.

  • charley0419
    charley0419 Member Posts: 354
    100 Likes 100 Care Reactions 100 Comments 25 Insightfuls Reactions
    Member

    my heart breaks for you and all of us , I feel for you your so young for this nitemare illness. Keep the faith

  • SSHarkey
    SSHarkey Member Posts: 298
    Sixth Anniversary 100 Care Reactions 100 Likes 100 Comments
    Member

    I am screaming with you!!!

  • Denise1847
    Denise1847 Member Posts: 835
    250 Care Reactions 500 Comments 250 Likes 100 Insightfuls Reactions
    Member

    I know that saying "I am sorry" doesn't being to help your pain, so I am sending you virtual hugs for this pain and suffering. There is no justice in this world, particularly with this disease. I am screaming with you. Please keep posting and garner the support from this group that you will need to get through this.

  • mrahope
    mrahope Member Posts: 527
    Fourth Anniversary 250 Care Reactions 100 Likes 100 Comments
    Member

    There is no suck like the sucky disease that takes your LO away from you before his/her time. In your corner, and hoping there's something more we can do to keep you and others from this terrible disease.

  • White Crane
    White Crane Member Posts: 849
    Seventh Anniversary 250 Care Reactions 500 Comments 100 Likes
    Member

    I did some screaming last night myself. It not only sucks, it hurts. Sending hugs.

  • HangingIn
    HangingIn Member Posts: 24
    10 Comments 25 Care Reactions First Anniversary 5 Likes
    Member

    I did some screaming just a few days ago, and I'm sure it won't be the last time.

  • Karen711
    Karen711 Member Posts: 62
    25 Likes 25 Care Reactions 10 Comments First Anniversary
    Member
    https://alzconnected.org/discussion/69129/all-i-can-say-is

    SCREAM😵‍💫‼️‼️‼️

  • Jgirl57
    Jgirl57 Member Posts: 468
    Fourth Anniversary 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    44?!?! SCREAM!!!!!! ((((Hugs)))

  • ghphotog
    ghphotog Member Posts: 667
    500 Care Reactions 500 Comments 100 Likes 25 Insightfuls Reactions
    Member

    I'm dbl screaming with you!! I'm dealing with my DW in memory care and my mom in hospice by myself.

  • fmb
    fmb Member Posts: 353
    100 Insightfuls Reactions 100 Likes 100 Care Reactions 100 Comments
    Member

    I feel your pain. I'm not screaming, just banging my head against the wall. DH is in an AL facility w/hospice (and appears to have yet another UTI) and Mom is in MC w/hospice 1000 miles away. Spending 5-6 days a week, 5 hours/day w/DH. Some days I don't know whether I'm coming or going.

  • annie51
    annie51 Member Posts: 127
    100 Comments 100 Care Reactions 25 Likes First Anniversary
    Member

    SCREAMING with you!! So sorry that your loved one got this awful disease so young. 😫

    Even a typed out scream makes one feel a little better…

  • MelissaNH
    MelissaNH Member Posts: 62
    25 Care Reactions 10 Comments 5 Likes 5 Insightfuls Reactions
    Member

    I'm screaming and swearing my head off (mostly in my head, though), DAILY! You are not alone.

  • WIGO23
    WIGO23 Member Posts: 103
    100 Care Reactions 100 Likes 25 Insightfuls Reactions 10 Comments
    Member

    😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱

  • Lgb35
    Lgb35 Member Posts: 93
    25 Likes 25 Care Reactions 10 Comments First Anniversary
    Member

    we are dealing with this at a younger age too and it sucks. My DH had a screening colonoscopy yesterday and when he was waking up he said he wanted that medicine to just put him out permanently 😭. He is very aware of what is happening.

  • ThisLife
    ThisLife Member Posts: 254
    Fourth Anniversary 100 Care Reactions 100 Comments 25 Insightfuls Reactions
    Member

    Oh my, Lgb35. I'm so sorry. I know it breaks your heart. (((hugs)))

  • ronda b
    ronda b Member Posts: 78
    25 Care Reactions 10 Comments 5 Likes
    Member
    https://alzconnected.org/discussion/comment/208391#Comment_208391

    Screaming

  • ronda b
    ronda b Member Posts: 78
    25 Care Reactions 10 Comments 5 Likes
    Member

    Screaming loud for you

  • Lisacrn
    Lisacrn Member Posts: 1
    First Comment
    Member
    I have the same battle every day. My DH was diagnosed in 2022 at the age of 55. This disease sucks. SCREAM, it is ok to scream. I am screaming for you.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

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