Seeking information about amyloid protein tests

LoriAmy

Hello All,
My best friend from childhood, now 61, is living in Orlando, Florida; she has, according to DNA testing from 23andMe, genes from both her father and her mother for Alzheimers. Her mother is in her last stage of alzheimers and is unlikely to live through the summer. My question: Cognito is running a new clinical trial, and we would like for my friend to be able to enroll in it - but, to enroll, a test confirming alzheimers has to be conducted. My friend has not yet seen a neurologist and we are at the beginning of seeking information about how to get the blood and/or amyloid protein tests that can confirm the presence of Alzheimers. Also, as the DNA test was from 23andMe re: the presence of genes from both parents, I am assuming that a specifically clinical DNA test might be useful. Is there somebody in the Orlando area that we can reach out to for informaiton about steps to take, who to see, what is available?

Many thanks for your help,
Lori

harshedbuzz

Sometimes studies will test people interested in enrolling in their studies. Has she reached out to them?

Otherwise, you'd probably want to reach out to a teaching hospital that has a memory center for next steps. One thing to consider is that getting in to see a neurologist for a first appointment can take months. I'm in Philadelphia; the wait to be seen at one of the top places is about 9 months.

HB

Cranddi

My wife was accepted into the Cognito study about a year ago. Unfortunately, it didn't work out for her. She is mid-stage Alzheimer's and had to drop out because she couldn't tolerate the MRI's any longer. As hb stated above, the process to confirm an Alzheimer's diagnosis can be lengthy. For my wife it started at our PCP. After he gave her a memory screening test that she did poorly on she was referred to a neurologist. The neurologist performed more detailed testing to confirm MCI and referred her for a lumbar puncture to confirm an Alzheimer's diagnosis. Unfortunately the results were very conclusive. The process took about 18 months. That's when we enrolled in the Cognito study.

Attached is information about a site in Orlando that is recruiting for the Cognito study (from ClinicalTrials.gov). Maybe they could answer some of your questions.

Cognito Orlando.png