Oh Hello Alzheimer's book

Belle60

Just wondering if anyone has read the book by Lisa Marshall about her caregiver journey. I just finished it and have a lot of conflicting thoughts. I did not want to put the book down but then did not want to finish reading it because I knew how it would end. Even reading her experience, I looked for ways to deny that my journey will be similar to hers and her husband. It is a beautiful love story. A lot of things she shared mirror what I have experienced so far. In some ways, I felt better reading she continued to work after her husband retired which alleviated some of my own guilt.

My DH is in stage 4 and has been for about 3-4 years. He is slowly declining so while reading her book I kept thinking "oh it won't be like that for us". but I realize that is not necessarily true.

Her ability to maintain her kindness and love towards her husband has inspired me to work harder at being kind every day. So it has helped me to read her book and I suspect I will be rereading several times in the future.

SDianeL

I too didn’t think it would be that way for us. My daughter in law is a nurse and tried to tell me but I was in denial. I thought I would care for my DH at home. I had to place him in memory care in January due to my cancer diagnosis. I thought we had years before progression. He progressed rapidly. I didn’t ask for hospice soon enough (although the memory care facility implemented hospice protocols and the nurses were great) because again I was in denial. He passed August 12. I’ll get her book. Thanks for posting it.

Iris L.

Belle, could you also post this book on the Books About Alzheimer's thread that I started? Thanks.

Iris

Belle60

https://alzconnected.org/discussion/comment/226570#Comment_226570

OK I will. I did not know there was a thread on books. Thanks!

jfkoc

Iris…could you bring up that thread?

Iris L.

I brought it to the top on the "I Am A Caregiver" board.

Gig Harbor

Lisa is a great example of someone who took wonderful care of her husband Peter and who was able to move on after his death. I see her instagram posts. She has met a man and he seems to be a great partner. She deserves all the happiness she can find during this next stage of her life.

Sunnyside42

I am listening to the audio book. It’s very interesting to learn about how other people experience caretaking. I would like to keep DH home until the end but we never know how this disease can render that impossible.

Belle60

The author of the book Lisa Marshall, does virtual support groups. I participated in one on Saturday and found it helpful. Only wish it was more often. All other support groups are during the week when I am working so I cannot participate. She does the free ones quarterly. She also offers paid support groups where you get a copy of her book.