Have any questions about how to use the community? Check out the Help Discussion.

New member

Just signed up today! Hope to get a better understanding of what is yet to come.

Comments

  • sandwichone123
    sandwichone123 Member Posts: 797
    500 Comments 100 Insightfuls Reactions 100 Likes Third Anniversary
    Member

    Welcome! There is a lot of wisdom on this board. Read a lot, but don't hesitate to ask questions. Thankfully, everyone is kind and supportive—we're all going through different but related "stuff."

  • DWTired
    DWTired Member Posts: 48
    25 Care Reactions 10 Comments 5 Likes
    Member

    We are here to help and listen!

  • SDianeL
    SDianeL Member Posts: 1,038
    500 Care Reactions 250 Insightfuls Reactions 250 Likes 500 Comments
    Member

    welcome. This is the place for information and support. Learn all you can.

  • annie51
    annie51 Member Posts: 176
    100 Comments 100 Care Reactions 25 Insightfuls Reactions 25 Likes
    Member

    Welcome. Sorry you have to be here. The most valuable thing about this forum for me was to validate all the feelings I was feeling - I felt more normal and less guilty. And you can vent and complain has much as you want with no judgement!

  • Pat6177
    Pat6177 Member Posts: 451
    100 Likes Third Anniversary 100 Comments 25 Care Reactions
    Member

    Welcome! This is a great forum. Almost everything I know about dementia, I have learned here.
    First, look at the top, at the purple banner. Over to the right is a button for groups. Tap on that and scroll down to “Popular Groups”. Just under that is a group for newcomers. You’ll find a lot of info in there.

    Good general info:

    Get all legal affairs in order while your PWD is still able to sign the documents. This includes wills, trusts, medical POA, financial POA, etc. Good idea to see a Certified Elder Law Attorney (see nelf.org and search for your location. These lawyers can help with both the legal documents and with the planning for how you would pay for long term care. Especially important if you think you will need to turn to Medicaid to pay for LTC.

    Realize that your PWD has a broken brain and will not be able to change. You will have to change and adjust to their current status. I have to say, I still sometimes struggle with this and get resentful. Ah well…

    Read the 36 hour Day

    Read a lot of the threads on here. There is just a wealth of info in here. Not everyone’s journey is the same but there are common factors that so many of us experience.

    Pat

  • Persuasion
    Persuasion Member Posts: 5
    Third Anniversary 5 Likes First Comment
    Member

    To emphasize Pat6177's recommendations: Get the legal stuff done as soon as possible and read The 36-Hour Day

  • jsps139_
    jsps139_ Member Posts: 228
    100 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    Welcome! This support group will help you in so many ways as it did me.

    Great advice on all the physical changes, a place to share the bad days and the not so bad days, a chuckle here and there, and most important - not feeling so alone in this journey.

  • WIGO23
    WIGO23 Member Posts: 130
    100 Comments 100 Care Reactions 100 Likes 25 Insightfuls Reactions
    Member

    I am sorry you are on this journey with us. Please check in whenever you need to. Sometimes just reading is all you need; sometimes you need to post your feelings; sometimes you need to ask a question; sometimes you need to really vent! Use this forum as it suits you best and know you are accepted here without judgement .

  • Dio
    Dio Member Posts: 721
    250 Care Reactions 500 Comments 100 Insightfuls Reactions 100 Likes
    Member

    Welcome, but sorry you have to be here. You've already received great advice from comments above. There's so much information on this forum. Just search on a particular word or phrase and you'll get a wealth of information.

  • Biggles
    Biggles Member Posts: 164
    250 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    Hello welcome to this wonderful group and I am so sorry that you are here. This is such a good place for help and advice. I felt so alone before finding this forum. Doctors help with symptoms this group helps with everything including the heart.

  • AlzWife2023
    AlzWife2023 Member Posts: 326
    100 Likes 100 Care Reactions 100 Comments 25 Insightfuls Reactions
    Member

    Welcome! This forum is a lifeline. I’m so grateful for the wisdom and kindness of the members.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more