New to Alzheimer's

MeeMoo9

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Hi, can you tell me exactly what you mean by "impaired speech"?

Andie704

Hi! I am 56 years old, and I received my early-onset ALZ diagnosis two weeks ago. I had a positive Amyloid & Tau PET scan. I'm waiting for my APOE test to come back to decide whether I can or will move forward with donanemab treatment. I'm very emotional, sad & scared of the side effects and my future.

lindajny

it’s quite overwhelming isn’t it. I have my PET scan on 2/3. I’m anxiously awaiting getting those results. Your emotions are so valid. You’re going through something scary and I’m sure there are so many questions you have. Hoping you connect with a good support system

tmmg

https://alzconnected.org/discussion/comment/233965#Comment_233965

My husband was just diagnosed at 57. The neurologist was skeptical about the benefits vs risks for the infusions. We are not inclined to do them at this time as it seems we should focus on really living the good years we have left together. but I also need to do more research on the LATEST that is known about the infusions. I am overwhelmed and trying to enjoy this denial phase for a minute. Anyone else decide not to do the infusions? He is on Aricept. Seems to have given him a little boost some days.

tmmg

https://alzconnected.org/discussion/comment/264547#Comment_264547

I am sorry you have to experience this. My DH was just diagnosed with early onset. We are concerned about the side effects of the infusions and are trying to decide if he should consider them. Not sure where to turn for good and current facts about the infusions.

eaglemom

All of these emotions are very normal. Its scary and frightening to receive a diagnosis and not know which way to turn. I will share something our neurologist shared with us: he said - give me a year, & together we'll get this figured out. One test leads to another, please just go along & ask questions. We'll figure it out and keep you as best as we can. It did take a year to complete all of the testing, etc that was needed. For us to understand the medications he was prescribing and frankly to even wrap our heads around all of it. DH was 54 at the time.

Each neurologist is different, if you don't care for one, find another. Research everything then research it again. Get a notebook and write down facts your finding out. This was 14 years ago. The injections weren't available then, but that's something you need to feel comfortable with before beginning. Don't do them because the neurologist told you to, do them if you think you personally will benefit. Of course, like everything, there are pro's and con's. Discuss them, write them down. Are they something you can tolerate? And…..I don't believe you have a magic time to begin the injections. Yes, at early on set, but you can take several months, or more to figure it out. Your decision.

eagle

Roxygirl

https://alzconnected.org/discussion/comment/264699#Comment_264699

I have been on Aricept for 2 months since my diagnosis and it has helped me…more focus. My neurologist advised me not to do infusions….risks of brain bleeds and I have high bp.

Take good care

Sco-B

https://alzconnected.org/discussion/comment/237665#Comment_237665

Love the Wizard of Oz reference! Hope you’re doing well.

Michele P

https://alzconnected.org/discussion/comment/264699#Comment_264699

I am sorry you are going through this. Go on the website Bright Focus Foundation. There are videos and articles about the infusions. They recently had a webinar about the different types of infusions that was excellent. Do whatever you can to slow up the progression.

Bamaher

https://alzconnected.org/discussion/comment/240401#Comment_240401

For what it is worth I have been receiving infusions in my home for the last 18 months. They seem to be keeping me stable in addition to other things.

eaglemom

That's such wonderful news that the infusion's are working for you. I'm glad to see that your not just relying on them, but rather doing other things to help slow the progression. In my heart of hearts, and this is my personal opinion only, I don't think any one thing works to slow this disease down. I truly believe you have to be doing multiple things and taking several medications to at least hold it at bay, some what. But that's my personal opinion, based on observation.

eagle