This disease makes EVERYTHING harder

annie51

I sit here on New Years Eve hearing fireworks in the neighborhood with DH asking me every minute or so what those noises are, and checking around outside multiple times. I feel bad that it’s making him nervous and angry and I’m selfishly wishing that people would just celebrate quietly. It adds one more thing to the list of things from every day life that used to be easy but now are affected by this awful disease - having a contractor come to the house (what are they doing here?), a power outage (why don’t the lights work?), an errand (where are we going?), going to the bathroom (where were you?). It is so all-encompassing that it’s amazing that we get through years of dealing with this, but I’m determined to do this to the best of my ability. My wish is that we will all find some amount of peace every day as we start another year.

BlueVelvet

Hello annie51,

It sounds like you have a question ball. I have one too. We live under a flight route close to Teterboro Airport and executive jets fly over every 15 minutes! So I'm there with you in spirit!

Wishing peace for you this coming year,

Amy

Biggles

Oh my goodness Annie you have reiterated perfectly where I am with my DH. We had a major failure this NYE and I never want to go through that again. But you are so right things were so easy once, now it’s constantly me and my shadow, what are those noises, checking that the fence hasn’t been knocked down, trying to go to the toilet on my own, making up his mind about breakfast, lunch and dinner and yet I care and love my DH so much I couldn’t do this any other way but I guess that’s the point it’s such a horrible disease I don’t want it at all. My wish is that we find a little more patience and care everyday while the year trudges on.

charley0419

I’m right either way you all , I just pray everyday nothing happens to me , funny after awhile everyone leaves you alone.

blacksparky

Every thing said here is so true. Seems like just yesterday, my DW and I were living a perfect life. Wow things change so quickly. The days just drag on and on with a new challenge seems like every day. I remember days when I would tell my kids that today I don’t like you but I will always love you. Well now I think to myself and say I don’t like you today (Alzheimer’s) but I will always love you ( my dear wife).