REM Sleep Behavior Disorder/Lewy Body?

lovesmbappe

Hello! I am new to this message board and would love to get involved with this community.
I am a 52 year old female diagnosed with sleep apnea and Persistent limb movement disorder at age 42. I self-diagnosed REM sleep behavior disorder from incidents in the past 20 years where I have injured myself by kicking nightstand, slamming my arm into nightstand water glass so hard that I fell out
of bed, etc.
My grandfather had Alzheimer's at about 72 and my father was diagnosed with Alzheimer's at age 80. After distressing cognitive decline, I sought a neurology consult.
I have had neuropsych testing and an MRI with a referral to cognitive rehab sessions.
I am steadily losing functioning ability to drive, pay bills, perform my job, cook anything, organize anything, etc. I am afraid of becoming too incapacitated by my cognitive decline before I manage to get an accurate diagnosis because I live alone, am not married and have no one to help me. Any advice on fast diagnosis route?

Janutt

Hello lovembappe,

Have you reached out to your primary doctor about seeking a neurologist? It takes some time But don’t give up be your own advocate. Fight tooth and nail.

Iris L.

Are you getting treatment for sleep apnea? Sleep apnea can cause declining functioning.

I too live alone and I am struggling with everyday activities.

Iris