obsessions
Comments
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there is no ryme or reason with this illness.
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Welcome! Lots of good information, advice and support on this forum.
My Dh in the early to moderate stages would often have fits of rage at night or wake in early morning hours. He is in stage 7 now and still somewhat combative in the morning and when assisting him in the bathroom.
I would suggest you discuss a different medication with your doctor. My DH reacted badly to seroquel when taken during the day. The night time dose did help him for awhile. Now he is on trazadone at night and it has been very helpful.
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Agree, most of the behaviors make no sense at all. Feel very isolated and alone, only 58 and DW's physical health is amazing but at this point we really can't converse much in any meaningful way. I feel her frustration in her inability to process or converse or express her emotions. Often behaves like a small child but without the potential to grow and learn. Even though this started 10 years ago feels like the current severity snuck up on me and I am not ready. I stay connected with sanity through work but at home feels like the walls closing in on me, and now with very disturbed sleep more challenging to stay loving and patient. Most of my resources go to ensuring she has safe caregivers when I work, plus I feel so much guilt if I leave her home for any type of social interaction with other adults. Sorry rambling on but just wondering how people find a way to carry on?5
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keep talking to the doctor. Risperidone helped my DH. Your DW is having delusions and hallucinations which cause anxiety and agitation.
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Zyprexa helped my wife. She still thinks my 20-year old lap robe is a valuable antique brought in a covered wagon by her ancestors, but her agitation is much improved.
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Thanks to all for suggestions. My DW now sleeping about 5-6 hours with risperidone, which is a God send. Still wakes up angry, shouting, striking out. Calls for me even though I reassure her I am right here. Often calls for her mom. Must be hallucinating?
Wondering if any key words/ techniques others have used for calming? She used to do better if I held her hand or put arm around her but now that agitates her more. Tried music, soft light, lots of light, open window shades, etc. So far no help.
My thoughts and prayers are going out to everyone experiencing this disease and their care givers too.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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