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I'm learning to accept this new reality

Hey I'm a 35 year old man who takes care of his mother. She lives a few blocks from me and is going through dementia. Early 2024 is when I first noticed signs. My mom is 77 years old, she is my heart, my Queen. She fights me on EVERYTHING and feels I'm taking her independence from her. I don't really get help from my siblings Also this past Nov my older brother died and I had to be the one to deliver the news to my mother. She took it rough, but I didnt anticipate having to tell her multiple times because of her current mental state. All of this really has been stressing me and breaking me down mentally. Having to be there and be strong for my mother, while I've been suffering in silence. I've been drinking more to numb the stress and pain but don't want to make it a habit or a vice. Sorry for rambling, I'm just tired. Anyone know any support groups in NYC that are good?
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  • AlzWife2023
    AlzWife2023 Member Posts: 417
    250 Care Reactions Third Anniversary 100 Likes 100 Comments
    Member
    edited January 2025

    I’m sorry for your loss & your situtation. We all understand here. You might have to start fibbing about your brother—as weird as that may sound. If it’s causing your mother and you distress every time you tell her you may just have to say something else when she asks where he is or when he’s coming to visit.

    There must be many support groups in NYC. Start by Googling all the hospital websites (NYU Langone for instance for Alzheimer’s caregiver support groups) also places of worship and community centers near you).

  • SDianeL
    SDianeL Member Posts: 3,158
    1,500 Likes 1,000 Insightfuls Reactions 2500 Comments 1,000 Care Reactions
    Member

    so sorry about your brother and your Mom’s diagnosis. Read the book “The 36 Hour Day which really helped me after my husband’s diagnosis. If your Mom is low income she may qualify for Medicare & Medicaid. Medicaid pays for memory care. Medicare doesn’t. She can no longer live alone. If something happened she wouldn’t know what to do. This forum is the best place for info & support. Come here often. We know what you’re going through. Google search for a teaching hospital in your area that has an Alzheimer’s program. They may have a support group. This website has a list of support groups and there are online groups. Go to the main page and search or call the toll free number.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more