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Sister was diagnosed 11-12 yrs ago...

SDianeL
SDianeL Member Posts: 1,230
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I joined this forum in Sept 2022 because I was caring for my husband who was diagnosed with Alzheimer's-Posterior Cortical Atrophy in 2021. I had to place my DH in memory care in Dec 2023 due to my cancer diagnosis. My husband Lonny passed August 12. Because I was overwhelmed with caring for my DH & my cancer diagnosis, I haven't posted about my sister up until now. My older sister was diagnosed with Dementia about 11-12 yrs ago and now seems to be in Stage 6. I am not her primary care giver but feel that I need the support & understanding of this group as my heart is breaking. My sister & I are very close (only 17 months apart) & I miss being able to do things together and share things with her, especially his last year. She is being well cared for at home so I don't have any questions at this time but just need support as her disease progresses. This group helped me so much the last 2 years, providing info, advice, support & prayers. I don't know what I would have done if I hadn't found it. Please pray for my sister and appreciate your continued prayers for our family. 💜

Comments

  • SusanB-dil
    SusanB-dil Member Posts: 1,317
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    oh, SDianeL - ALL of 'this' is definitely heartbreaking!

    ((HUGS)) … and prayers

  • Quilting brings calm
    Quilting brings calm Member Posts: 2,665
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    I am so sorry. The losses just keep piling up - and they seem to get closer together the older we get. Even though you are not the primary caregiver, we know you are affected by this. We are here for you

  • Carl46
    Carl46 Member Posts: 463
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    I am so sorry, Diane. I have been there; I spent my 49th birthday arranging my brother's funeral and buried another brother in 2012. I'd hug you if i could.

  • forbarbara
    forbarbara Member Posts: 196
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    This $?&/!!#%* disease! It just never stops giving, does it?
    SDianeL, you have been such a comfort to so many of us here. I hope you continue to find comfort, empathy, humor and even occasional snarkiness here. The heartache is just a tiny bit easier to bear when you share it. Be strong.

  • housefinch
    housefinch Member Posts: 457
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    I’m so sorry to hear this. You are such a source of support to so many. It’s so unfair. Sending you hugs and comfort.

  • harshedbuzz
    harshedbuzz Member Posts: 4,801
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    I am so sorry to hear this.

    My mom had a similar situation when dad had dementia— 2 of her older sisters did as well. It was a different, and yet similar, experience as losing dad.

    HB

  • Russinator
    Russinator Member Posts: 114
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    ((HUGS))

  • fmb
    fmb Member Posts: 537
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    I'm praying for you and your sister. I'm in a similar situation. DH has Stage 7 ALZ w/comorbidities and is slowly wasting away. My mother is in a MCF 1000 miles away with Stage 6 ALZ and heart failure. Fortunately my brother is point person for her care; I don't think I could handle the care for both of them. It does sometimes seem like the world is piling on grief on top of grief. The care and support from everyone in this forum is a comfort for all of us. ((hugs))

  • ALCB
    ALCB Member Posts: 37
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    I'm so sorry. We're all here whenever you need anything.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more