Have any questions about how to use the community? Check out the Help Discussion.

Sister was diagnosed 11-12 yrs ago...

SDianeL
SDianeL Member Posts: 1,114
1000 Comments 500 Care Reactions 250 Insightfuls Reactions 250 Likes
Member

I joined this forum in Sept 2022 because I was caring for my husband who was diagnosed with Alzheimer's-Posterior Cortical Atrophy in 2021. I had to place my DH in memory care in Dec 2023 due to my cancer diagnosis. My husband Lonny passed August 12. Because I was overwhelmed with caring for my DH & my cancer diagnosis, I haven't posted about my sister up until now. My older sister was diagnosed with Dementia about 11-12 yrs ago and now seems to be in Stage 6. I am not her primary care giver but feel that I need the support & understanding of this group as my heart is breaking. My sister & I are very close (only 17 months apart) & I miss being able to do things together and share things with her, especially his last year. She is being well cared for at home so I don't have any questions at this time but just need support as her disease progresses. This group helped me so much the last 2 years, providing info, advice, support & prayers. I don't know what I would have done if I hadn't found it. Please pray for my sister and appreciate your continued prayers for our family. 💜

Comments

  • SusanB-dil
    SusanB-dil Member Posts: 1,249
    1000 Comments 100 Care Reactions Third Anniversary 100 Likes
    Member

    oh, SDianeL - ALL of 'this' is definitely heartbreaking!

    ((HUGS)) … and prayers

  • Quilting brings calm
    Quilting brings calm Member Posts: 2,602
    2500 Comments 500 Care Reactions 500 Likes Fourth Anniversary
    Member

    I am so sorry. The losses just keep piling up - and they seem to get closer together the older we get. Even though you are not the primary caregiver, we know you are affected by this. We are here for you

  • Carl46
    Carl46 Member Posts: 363
    100 Likes 100 Care Reactions 100 Comments 25 Insightfuls Reactions
    Member

    I am so sorry, Diane. I have been there; I spent my 49th birthday arranging my brother's funeral and buried another brother in 2012. I'd hug you if i could.

  • forbarbara
    forbarbara Member Posts: 193
    100 Care Reactions 100 Likes 100 Comments First Anniversary
    Member

    This $?&/!!#%* disease! It just never stops giving, does it?
    SDianeL, you have been such a comfort to so many of us here. I hope you continue to find comfort, empathy, humor and even occasional snarkiness here. The heartache is just a tiny bit easier to bear when you share it. Be strong.

  • housefinch
    housefinch Member Posts: 441
    100 Care Reactions 100 Insightfuls Reactions 100 Likes 100 Comments
    Member

    I’m so sorry to hear this. You are such a source of support to so many. It’s so unfair. Sending you hugs and comfort.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more