This Cruel, Cruel disease

Kat63

Today I took my husband to Respite Care for 2 days. Just a few months ago I would have never thought I would do that but things have changed so much. My DH is not a husband anymore and I am truly just his caregiver. I needed the break. Never would I have thought it would come to this as he was the man I loved more than I could express and he felt the same way about me. I was always the happiest just being with him. So cruel what this disease has done.

CindyBum

(((Hugs)))

midge333

You are not alone. I had hoped to keep my DW at home until the end. I placed her in Memory Care 2 months ago.

Dio

We understand. Many of us have been there, too. Be kind to yourself and nurture yourself. Come here to vent as often as you need. When acceptance takes hold, you'll find it easier to cope.

CampCarol

I’m very happy for you that you were able to get a break, even if it was just 2 days. This is something I’ve been thinking about as well. May I ask how your husband did with the respite stay? Was it difficult to convince him to go? I don’t know that this is something my DH would tolerate at this point so curious to hear from others who have some experience with this.

Kat63

Well my DH didn’t do well. He got combative with the caregivers and I received a call and had to go get him. He is okay most all the time with me. We tried the care center that is closest to our house. Not sure it was the best fit so give it a little time and will try another one that is hopefully better suited for Alzheimer patients.

SDianeL

so sorry. We know how you feel. Sending a hug.

Biggles

The pain this awful disease brings with it is almost intolerable and others on the outside just don’t understand. My DH of 54 years has always been my friend, my protector, my love, my everything I feel your pain and loss. You are not alone.

Bailey's Mom

So, so sorry. Things with this disease can change so fast…just when you think you almost have a handle on the current situation it blows up into something completely different. ❤️

marier

Hugs and more hugs to you! I made a the decision to place my DH in respite care for 7 days starting the end of month. He has been to respite twice before with not so good results. The last time was about two years ago. I swore never again. Hopefully this time will be successful.

I need the break from the physical care and for my emotional well being. It's so hard for me to just take care of me. I know that I need this break and when I return to being 24 hr caregiver to DH , he will benefit from me being rejuvenated.

s77barri

Going through the same process with my DW. So sorry that life has taken this route.

I cannot get her to take her meds.
Good luck and hang in there.

ALCB

So sorry. I'm happy that you got a break and sorry that this is how it had to come. Wishing you the best ♥️

Russinator

(((HUGS)))

ProfT

https://alzconnected.org/discussion/comment/236224#Comment_236224

I placed my wife in a skilled nursing facility last March. She is now around Stage 7 on the FAST scale. She is mostly wheelchair- ridden. She is getting assessed for hospice. It is hard to visit her to see her in such sad shape. We both are better off now that she is being better-taken care of. The pain is always there. Grief is love with nowhere to go.