I just want to thank all my caring supportive friends

RetiredTeacher

It's so odd that this online community of caring souls is brought together to give one another encouragement and support eventhough we are all going through hell. My friends and family try to understand but only you folks here truly get it. Some days we can be so strong and others we are barely hanging on. I lurked for months before I felt strong enough to reach out. Now when I need to feel I'm not alone in this, I reach out and so many have responded with kindness and support. We all know there is no happy ending but somehow I am able to cope with whatever comes because of all of you. I just wanted to take the time to thank all of you, the lurkers, the frequent posters, those with specific responses and those who have experienced the ultimate loss. I have learned so much from all of you. The value of your knowledge and experience, sharing the pain and sadness,the power of faith and the strength to persevere inspite of our own pain. Thank you all so very much. You keep me showing up every day. 🫂 and 🙏 for all of you.

BPS

I agree, I too am thankful for the people here being willing to share their experiences.

charley0419

you said it perfect, I’m in group couple of yrs and best thing that ever happened to me finding it. Your right no one knows what it like unless your living this nitmare and too be honest my DW not too bad yet no driving or cooking repeats things and confused at times. There’s ppl here I really feel for. Guess I’m waiting for shoe to fall

ladyzetta

Retired and BPS.

Alot of us here are sharing with you the same, care and knowledge, we received in our time and need. When I placed my DH, eight years ago, I was told about this website, and believe me I would have been a basket case, if it was not for the caring people here, they understand. You will also be able to help others. Hugs Zetta

RetiredTeacher

Zetia,

My situation is nowhere near as dire as many. This site and its mementos is a lifeline for me. I really struggled to accept the diagnosis and the end of dreams and future plans together. People here have really helped me accept and understand. In the future I can help ease other people's journeys. This is tough stuff. Noone should have to endure it alone.

Biggles

I couldn’t agree more so well expressed. Before I found this site I was a mess, desperately crying every day, I visited Doctors, had health care workers visit, an online phsycologist who said things like “he’ll die soon so just think of happy things when this happens” had suggestion after suggestion from medical people who said I needed my space but I had NO understanding. I have found it on this wonderful site, a true, kind understanding of this journey and that I am not alone. My outlet was writing poetry and now when I look back and read it, it makes me so sad, I was in such a dark place and dangerously wished I wasn’t here. It was everyone here and your support, kindness and understanding that has given myself and my DH a life, albeit different from when we started this journey 54 years ago. I will always be eternally grateful for this site and everyone on it. Thankyou.

Biggles

annie51

Very well said @RetiredTeacher! These friends are a lifeline to sanity that can only come from someone who truly understands. I only wish I could spend more time responding to posts but my DH commands so much attention that I have to steal away a few moments to review the posts. But there is always someone responding whenever I post and I am also grateful for them all.

Gator1976

My wife was diagnosed 2 months ago. It brings everything that’s been happening into perspective. We chased the reason she was faltering on so many things all last year. We have wonderful team doctors at Mayo Clinic and elsewhere. Her mother had it for 2x years with my wife being the caretaker. So, we’ve already seen all,it’s ugly sides. That experience made the news all that much harder. She already thinks her life is over, what’s the point in living any longer. We are working on changing this mindset. She is beginning stage 4. I’ve taken over everything from her including taxi driver.
she’s having massive anxiety issues the past month. The doctors are working on her meds and I’m trying to deal with it to turn her around, her life isn’t over, she can still travel but the anxiety is so, so debilitating!!!

How do I deal with her “anxiety attaches”? I don’t know what to do.

CampCarol

https://alzconnected.org/discussion/72651/i-just-want-to-thank-all-my-caring-supportive-friends

I’m so glad you posted this, you captured my feelings exactly. I have no idea what I would do without this site and the wonderful caring people who share, advise, and genuinely lift me up every single day. Prior to finding you all, I felt very isolated. Now even though I still am in a physical sense stuck in our home, I know you’re all here should I need help. I hope someday to be able to pay it forward to others who have to find their way here.

midge333

I felt very alone until I found this group. I am thankful for the advice and support I have gotten here.

Jazzma

Every time someone tells me 'you're so strong!' thinking it's a compliment I want to scream. I'm NOT strong, I'm terrified and trying to hold up a boulder that is eventually going to fall and crush the person I love most in the world. You are the only people who understand that.

trottingalong

You said it perfectly. I read posts every single day. This is my support group and I truly believe we are an amazing group of people.