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Life after diagnosis

I’d be interested to hear how you’re dealing with life after dx- like your personality has changed. I feel super sensitive and just different.

Comments

  • lfaust58
    lfaust58 Member Posts: 16
    10 Comments
    Member

    In my case, the personality changes happened BEFORE dx. My then-girlfriend oberved that I became less communicative & expressive, and more withdrawn & moody (she used the word "obilvious". My performance at work was affected & I went through several "lay-offs". It did and still does negatively affect our relationship.

    After the dx, we did some research & discovered that AD symptoms can appear several years before dx.. I still experience the obliviousness & hopelessness at times, I've noticed changes in my handwriting. Planning & problem solving is getting increasingly more difficult. The strrengh & tone of my voice has changed. I am easily overwhelmed by things I used to understand clearly

  • Watson1
    Watson1 Member Posts: 37
    10 Comments 5 Insightfuls Reactions 5 Care Reactions 5 Likes
    Member

    changes understanding the changes is part of the challenge and getting used to the changes with out putting to much focus on them is important. change is continuous but not generally rapid. make notes of your perceived changes so you can revaluate later. dementia has its own caotic rhythm. my alzheimers is teaching me a new dance…………..

  • GEH
    GEH Member Posts: 22
    10 Comments 5 Likes First Anniversary 5 Care Reactions
    Member

    Hello lost1,

    I definitely felt differently after I was diagnosed. My first reaction was, Yes!!, I am not crazy and haven't been making this all up. It had been a three year slog of "There's nothing wrong with you. Maybe you should go see a therapist.". But that did not last long before the two by four of the diagnosis hit me hard. I think I became a little numb with the shock of reality. I cried. Felt alone and sorry for myself. So I allow myself a bit of a pity party. I don't remember how long I allowed that to go on. Maybe a month or two. But I did come out of it. My life continues, day to day. I read everything I possibly can regarding Alzheimer's, seek out drug trials and new therapies. I try to be gentle and kind to myself. I do volunteer work. Keep in contact with my close circle of friends.... Just my two cents. 😊

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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