Newly diagnosed DH

NMF

My DH 57 years old just diagnosed. It was a long taxing diagnostic process of tests as I’m sure most or some can relate. My DH exhibits a terrible loss of emotions/cold/distant-he becomes mean and harsh- curses. It’s been difficult to let go, but he seems happiest at least for him, when he is alone doing yard work/watching tv which I’ve realized best to just let him be.
I can’t really talk with family as they don’t seem to fully grasp the disease process.

blacksparky

unfortunately family and friends will never understand what we are going through. Even if they have experienced taking care of PWD, no two are alike. My DW is 55 and was diagnosed a little over two years now. The first year was a breeze but this past year has been hell. She’s now a solid stage 5 and leaning into stage 6. No day is the same. From talking to her friends which aren’t really there to packing and unpacking her travel bags to go home, to spending hours trying to get out of the house( she’s left the house a couple of times so I now have double keyed locks on the doors). Today she slept in and has been in her recliner watching reruns all day. Hang in there and try to enjoy the good days as they are few and far apart. ❤️

SDianeL

welcome. So sorry about your DH diagnosis. Learn all you can about the disease. The book “The 36 Hour Day” helped me after my husband’s diagnosis. Also search online for videos about caregiving for dementia. Come here often for info and support. We understand.

NMF

https://alzconnected.org/discussion/comment/246607#Comment_246607

https://alzconnected.org/discussion/comment/246605#Comment_246605

I am very sorry for your situations- I already purchased the book- thank you for sharing with me🩷

Cardenas1816

I’m so sorry you are going through this. My DH (also 57) was diagnosed with EOAD a little over a year ago. He is just now starting to exhibit signs of anger/frustration that make him seem cold and distant at times. We have talked about it during times when he’s more lucid and he says it’s because those are the times that he’s thinking about having a terminal diagnosis. It’s sad to see him this way because he was always such a happy guy. All we can do is make them as comfortable as possible and help them to retain their dignity. My prayers are with you.

NMF

The support here is incredible and I wish I had reached out sooner- much love

I received “The 36 Hour Day Book” yesterday and will start it today..

Jgirl57

Welcome; yes there are many times I just let my DH/Alz be. If I initiate any conversation it can go awry quickly and many times he just does not understand the concept of what I am saying. When we are doing grooming or other tasks I just calmly and firmly give one or two word directives along with pointing gestures . Good to know you found the 36 hour day book and also the Teepa Snow videos are very helpful.