Lonliness when caring for a spouse with ALZ/dementia
Comments
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This is a very lonely road called dementia. The road twist and turns and no end insight. The loneliness for me never really goes away or does it improve. Loneliness is always just on the surface. The anticipation of this trip ending is filled with dread of the unknown and of course grief. I know I will survive the trip and hopeful when. its over I will thrive. Hugs to all.
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Ditto! Dementia was never even on my radar and now I just tell myself to not worry about tomorrow and just enjoy today. Enjoy his voice, his touch, his kindness. There are no intellectual discussions for us either. I have gotten really good at journaling. All the things I would tell him, I now write down instead.
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Thank you for your words of wisdom. Truly. 😓
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Besides Alzheimer’s, I discovered several years ago (around the time we retired) that my hubs also has Autistic Spectrum Disorder (ASD/Asperger’s) which helped explain our sometimes strange/frustrating marriage. Double whammy!
I love him dearly and will never let him go this horrible path alone, but the lack of emotional reciprocity with Asperger’s is an especially lonely life and now this …To be honest, for my own health and emotional well being I would have separated from him when I realized he couldn’t change even with counseling, but then the Alzheimer’s reared its ugly head and here I still am.
Thanks for listening3 -
My wife and I had serious relationship issues that had been going on for a long time and I was ready to leave too. Then she was diagnoses over 9 years ago and here I still am too. She has been in MC for 16 months but I still feel an obligation to care for her so my life has not moved on yet. With the before diagnoses and the post diagnoses I wonder if I will ever thrive again. I have become used to being alone and am comfortable but not thriving.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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