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Where has my husband gone? Loss…

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I find myself asking that question often. He’s here physically, but he is not the man that he was when I married him. I feel so sad today. Yet it doesn’t bother him as much since he doesn’t even realize how much he’s changed.

he’s inside the grocery store while I’m waiting in the car because I just don’t have the patience to shop with him. He’s soo slow, wandering aimlessly, but really wants to still do some things. He’s safe because I’m watching the door where he comes out.

I’ve taken over all else, it feels strange to remove him from most of his previous responsibilities, esp finances. He acts ok with it but sometimes just looks so lost. Sometimes we can joke about the situation but as our communication continues to break down, I have to just nod my head when I have no idea what he’s talking about.

I just want to hear from other caregivers about this feeling of loss and sadness.

Comments

  • Jgirl57
    Jgirl57 Member Posts: 669
    Fifth Anniversary 250 Likes 500 Comments 25 Insightfuls Reactions
    Member

    (((Hugs))) yes, it is sad and lonely. There will come a time when your DH will not be able to the shopping and you will figure out the next step . For us it’s curbside pick up.
    I no longer initiate conversation because it goes awry quickly. It is a loss

  • Cathy coconis
    Cathy coconis Member Posts: 22
    Fourth Anniversary 10 Comments 5 Care Reactions
    Member

    thank you for your support and hugs. We do primarily use curbside pickup for groceries. So true about conversations- I still feel angry sometimes when my DH doesn’t reply to me. Then I go “Oh that’s right. He has Alz” it sounds silly but I just think he’s ignoring me, and feel hurt. I have to keep reminding myself to keep everything in perspective.

    I’m sorry you’re going through this also

  • SDianeL
    SDianeL Member Posts: 1,783
    500 Insightfuls Reactions 500 Likes 1000 Comments 500 Care Reactions
    Member

    yes it’s lonely and sad. It’s called anticipatory grief. You grieve for what you’ve lost and the future that won’t happen. You become a nurse and he becomes your patient. You no longer have a companion. Grief comes in waves. Things trigger it. Like a new behavior that comes up unexpectedly. Someone on this forum said there is a technique called “thought stopping” that helps. I use it but it’s not easy. We understand how you feel. Sending hugs. 💜

  • Cathy coconis
    Cathy coconis Member Posts: 22
    Fourth Anniversary 10 Comments 5 Care Reactions
    Member

    thanks so much SDianeL! What a kind response, esp the ‘we understand how you feel’ part. It’s good to share with others.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more