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ronda b
ronda b Member Posts: 227
100 Care Reactions 100 Comments 25 Insightfuls Reactions 25 Likes
Member

My BF passed away last night unexpectedly. Her Dh has alz. Stage 6 .She took care of him by herself. Her kids have have no idea of what to do with their dad. They know nothing about his meds.,his sleep habits,how to get him changed or anything. She didnt keep them informed on anything. There is no poa or will or guardians set up for him. Just a warning, Please keep someone beside yourself involved in their care or how let them know exactly what it takes to care of the LO.. I. Know we think our family's are busy or we don't want to burden them,but today was a reality check for me. I knew more about his medicine and habits and actions than his family did. That was not right.

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  • Lgb35
    Lgb35 Member Posts: 146
    100 Care Reactions 100 Comments Second Anniversary 25 Likes
    Member

    I am so sorry for your loss. I do keep our adult kids informed about their dad. At this point he is fairly independent but we know that will change. This is going to be hard on your BF’s hubby with the change in routine and your BF not being there. Prayers

  • ronda b
    ronda b Member Posts: 227
    100 Care Reactions 100 Comments 25 Insightfuls Reactions 25 Likes
    Member

    Thank you. I know. Right now he has no idea what's going on.

  • SDianeL
    SDianeL Member Posts: 1,783
    500 Insightfuls Reactions 500 Likes 1000 Comments 500 Care Reactions
    Member

    so sorry for your loss. Thank you for your post. Very Important information.

  • Dio
    Dio Member Posts: 831
    250 Likes 250 Care Reactions 500 Comments Third Anniversary
    Member

    Thank you for the wise advise/reminder. I'm the worst procrastinator. I've been planning to put together a care "cookbook" for DH so that secondary agents behind me on his DPOA and Health Directive know exactly what to do. It may be a lot of work, but will save everyone later.

  • ????
    ???? Member Posts: 38
    Third Anniversary 25 Care Reactions 10 Comments 5 Insightfuls Reactions
    Member

    My wife's primary doctor asked us if we had a plan for my wife if something happened to me before her. This opened up the window for us to have a discussion with our daughter and son in-law. My wife could not live independently at home anymore. So we toured Assisted living places that also had Memory Care facilities. We came up with a plan and have everything written down. I suggest if you are carry for an ALZ love one, that you come up with a plan.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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