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Father Diagnosed, What Now?

Hello everyone! My father was just yesterday diagnosed with EOAD after his father was hit with Alzheimer's, and his brother is exhibiting the same symptoms. In January my father will be tested to see if there's a genetic link, but my understanding is that it will be almost certain that I will have the same condition this is conclusive. I am currently very distressed as I watch my father undergo the same process his father did, and I am afraid that the same will happen to me. At this time, I'm not sure what the best route is to proceed in regard to coping with both ends. My significant other is concerned for my wellbeing as I navigate the anxiety of this, and it would be very helpful if anyone could share any resources for proceeding or how to go about getting help regarding the mental health end of this. I really appreciate your time and energy!

Comments

  • eaglemom
    eaglemom Member Posts: 850
    Legacy Membership 250 Likes 500 Comments 100 Care Reactions
    Member

    First of all welcome to the message board. I'm sorry your here, but we're here to help you.

    Let's first take several deep breaths. Have you been in contact with your PCP? Discussed your concerns and anxiety with them? If not, that needs to happen. Dare I say it, but what you are feeling is normal. Of course your concerned / distressed or a hundred other emotions, that's normal. What is excellent is that your significant other is concerned for you. Therein, someone whom cares for you is concerned for you - that is huge. For them and for yourself you need to make some steps to help you with all of this.

    On a personal note, I will tell you there is absolutely nothing wrong with taking a medication to help you deal with your current situation. It doesn't mean your weak, it means you know you need a little help for the time being.

    Secondly I would check and see if your local ALZ Chapter offers any group support. Some offer in person and some have Zoom meetings. These would be beneficial for you to just be with others whom are in a similar situation as you are in.

    Let me end with, please do not paint your life's picture going forward. It may or may not turn out how you think it will. I will say, the journey is never how you expect.

    As questions, and come back often.

    eagle

  • SuperStone01
    SuperStone01 Member Posts: 2
    First Comment
    Member

    Thanks for the welcome! I really appreciate your thoughtful reply, it is helpful. I'll chat with my PCP as I haven't yet. I've taken your words to heart and will proceed with them in mind. Thank you very, very much, and I hope you have an excellent day.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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