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Not much support from family,

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  • SDianeL
    SDianeL Member Posts: 1,880
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    welcome! It’s very common that there is no help from family and friends. For many reasons. Many say they don’t want to see the person that way. They are living their own lives. It might help if you post a bit more information about your LO and what stage they are in. There is a post you can search for on this forum that someone wrote. It’s called “The Cavalry Isn’t Coming” it may help. So sorry you are going through this.have you read the book The 36 Hour Day? It helped me after my DH diagnosis. This is the place for info and support. Come back often

  • mlerario
    mlerario Member Posts: 2
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    I’m reading 36 hour book & it is helpful but it would be more helpful if I had more help.
  • Lazuza
    Lazuza Member Posts: 13
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    Member

    I'm really sorry you are going through this. What area of the country are you in? Is your LO at home or in memory care?

    Have you called your local chapter of the Alzheimer's Association and requested a care conference? When this all started for me, that's all I had and it was the best starting point. For us, nothing has come close to the support provided by the Alzheimer's Association and Care Yaya.

    Also, have you reached out to your local government's office for senior services? Does your LO have a neurologist and a geriatric psychiatrist? If not, you will need them, so I would identify providers and make appointments. (Neurologists often have wait lists of many months for new patients and the ones who happen to have availability usually have it for a reason, including absent bedside manners.) If your LO does see these specialists, reach out to them and request information about local services.

    Also, suggest joining a support group and pursuing individual psychotherapy. This is no easy road and you really don't want to do it alone. Especially if this is a new diagnosis for your LO, you are sometimes going to feel like you are literally about to crack. Support is what helps you through it.

  • SDianeL
    SDianeL Member Posts: 1,880
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    Member

    you can call the Alzheimer’s Org toll free number at the top of the main page. They may have some ideas and resources for help. Sorry you don’t have help. Being a caregiver is mentally and physically exhausting.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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