Kisunla

bettygmadison

Good day to all. I'm looking for feedback on with Kisunla, how treatments went, results, etc. Thanks in advance

LBC83

Unfortunately, it seems that those of us on an anti-amyloid drug (I'm on Leqembi) are generaly not participating in AlzConnected, as evidenced by the lack of replies to your comment. I'm involved in other internet forums where there is much more active participation by people currently taking Kisunla & Leqembi. In general, some have side effects such as headaches and nausea from the infusions with either drug. Generally, for those who stick with it, the side effects go away after several infusions. I have had zero side effects. Today I had my 30th infusion of Leqembi, and I feel perfectly normal, just as I have felt after every infusion so far. I'm planning to go run on a treadmill for 4 miles later today, then swim some laps.

In terms of results, the phase 3 trials for the two anti-amyloid drugs on the market demonstrated a slowing of cognitive decline compared to those on placebo. My trite reply to queries about effectivity of the drug is that it isn't particularly easy to perform a self-assessment of cognitive decline. Even if one could easily perform a cognitive self-assessment, how would one determine the state of one's cognition had one not started on the drug, to determine if the drug has been effective? With that caveat, my Neurologist performed a quicky cognitive test about a year after I started on Leqembi, and I scored the same as shortly before I started on Leqembi. I declare that a success.