Doing enough?

Paula48foster

My wife is 56 years old, she was diagnosed with Early On Set 2 years ago. She has progressed into early stages of moderate. The day she was diagnosed we were given basic slow down med and off we went. They said there were clinical trials we could try etc, but when I look it doesn’t seem to fit her age range etc. I feel like we were sent off like, “Good luck with that.” Although the doctor was great I wasn’t given anything I was supposed to or search for. My wife is FIT, she can’t follow a class any longer but she has personal trainer, yoga etc, lots of walking. She’s able to a lot physically, not near what she once was, but she’s spinning mentally, memory and processing wise. I just feel like I have missed the bus on something out there that could help her. We weren’t really even told how often we should get checked on by the Neuro, so I made an appt (which was 4 months from the day I tried). What am I missing? Also looking for a support group for people her age, (no offense). When I tell people she has ALZ, they can’t seem to grasp that, as in their mind you have to be 75 or older.

Iris L.

Welcome Paula. If you visit the Spouse/Partner board, you will find more members to respond to you.

Iris

eaglemom

Welcome to the message boards. What Iris said is correct - the Spouse/Partners board gets more traffic than this one.

My DH was diagnosed at 54, so I can totally relate to what you are saying. See if you can find support groups to attend, either virtually or in person. Keeping the mind busy is vital. My DH had never painted before in his life, but all of a sudden he wanted to paint watercolor pictures. I made sure he had the supplies and he's self taught himself. Now he's painting acrylic and giving away his paintings. They are good. He likes putting models together, word games. Together we play games. You see where I'm going here. Find what she likes doing and encourage it. Lots of people enjoy coloring, adult coloring is a big thing.

Check to see what's available and add to that with what you do together.

eagle

Bestillmylove

https://alzconnected.org/discussion/73664/doing-enough

It's a lot. My DH was diagnosed a little over a year ago with Early Onset at the age of 58. Our first neurologist just brushed over like no big deal- did not prepare us at all. Since that I have educated myself & got him to a new neurologist. This isn't my first time dealing with Alzheimer, but it is my first time dealing with EO and it is in my opinion a whole different ball game. In my husband's situation he has already progressed moderate to severe stage when it comes to his cognitive ability. I was not prepared for this progression. He went from building 100-million-dollar buildings prior to losing his job last February to barely being able to do simple task without direction. He was perfectly healthy, worked out (thankfully still can work out) can still do physical work. He does tire and has to take breaks. His Dr. at John Hopkins memory care faciality has said with EO they have a tendency to progress much quicker than someone over 65. Do your best to connect with people in your same situation with EO.

Laura2020

https://alzconnected.org/discussion/73664/doing-enough

HI. I was diagnosed at age 54 with early on-set Alz. I just turned 56, so I can relate to wanting to connect with people in the same age group. I'm also active, fit etc. I'm sorry the doctor made you feel that way. I myself am receiving Leqembi infusion every two weeks. I would push to get her in to see the doctor to discuss treatment.