Stage 7a- need to know if possible to keep them home

Babz0226

My 78 DH has Aliz and dx 2017 MC, he is progressing has anyone kept their LO home until the end. He is still going to day care 3 days a week ,will be 2 years in Oct. When is Hospice available ? I have been doing everything myself, he has had no showers since Jan but he lets me wash him . Bladder incontinent some BM , sometimes, not always. Have to cut up all meals, sometimes he will have a problem swallowing water, have to crush 2 of his pillls. I put a call in for Hospice evaluation from people that said I should. No shadowing, been there done that. He seems tired and sleeping all night and til 12:00 on the day no Day Care. I think I need some help don't know how long he will continue with Day Care. Married 57 years and big decline the last 6 weeks. What to do????

He is on Seroquel and that has helped a lot. Any feedback would be helpful .

cdgbdr

Please reach out to hospice for an evaluation if you don't hear soon from them. It is possible to stay at home but you will need help.

Babz0226

Thank you- that is what so may people have told me,even the Day Care has told me he is progressing.

Lills

I was able to keep my DH home until his death. I had 30 hours of CNA help come into our home each week to help bathe, etc. It was my gift to him. Yes, doable! Yes, hard. Yes, worthwhile!

Babz0226

Thank-you makes me feel hopeful.

PEMDAS

I am in the same situation. MY DH is 20 years my senior, and I am struggling physically getting him around, and the incontinence is very difficult to keep him clean and safe. I made a decision this week to initiate the process and submit a request for long-term care. My thoughts are, what am I waiting for? An accident if I drop him? I cannot even leave the room any longer as He tries to get up and forgets he cannot walk. I do not want him hurt, and then the end comes with pain for him. It is a very hard decision, and truly, I will miss him, even though the home is across the street and I plan to visit every day.

SDianeL

see if his doctor has a Case Manager or Social Worker who can help you get a hospice evaluation soon. You need help asap. Be sure to tell them that he is having difficulty swallowing.