Life expectancy

jehifer

Hello. My husband received a diagnosis of early onset alzheimers. He has lots of questions, one which is about life expectancy. Reading between 4 years to 20. How long after diagnosis do people with early onset alzheiners need more care.

Goodlife2025

There is early on set and there is REALLY early on set and EVERYONE progresses at their own pace. My spouse diagnosed at age 48 (stage 4) is now 49 and in full on stage 5. I think she is progressing approximately one stage every 7-12 months.

harshedbuzz

@jehifer

Hi and welcome. I am sorry for your reason to be here but pleased you found this place.

Every PWD will progress at their own rate. Specific to EO Alzheimer's, on one hand it does tend to progress more rapidly than in older individuals, but there is less likelihood of a co-existing condition to cause death before the end stages of Alzheimer's.

These averages don't always reflect the lived experience here. There is a poster "Crushed" whose DW had EO Alzheimer's who passed recently. She had symptoms in her late 50s/early 60s and was in stage 5 or 6 when I joined this site 8 years ago. He placed her about a year or 2 into my time here when her care began impacting his health.

HB

cdgbdr

So sorry for you and DH.

My DH was formally diagnosed in 2024 at age 72. He had been having issues for years that we now see as the dementia rather than just a difficult personality. He is now progressing and I plan to have him admitted to memory care in the next 1-2 weeks. He needs 24/7 supervision.I think this has been going on for 8-10 years in hindsight. Once it became impossible for me to rationalize it away, he has progressed from needing part time companionship to full time supervision and assistance with most everything in one year.

PlentyQuiet

DH was diagnosed in 2021 by lumbar puncture at the MCI stage. Age 60. Last month we moved into hospice.

blacksparky

My DW was diagnosed in 2023 with EOAD at the age of 53. We were also told that the Alzheimer’s probably started several years before diagnosed. I’m thinking she was at stage 3 then. She is now late stage 5 with a foot into stage 6. She lost all of her IADL’s very soon after the diagnoses. She could no longer handle finances, driving, using home appliances, etc. Now 2 years in, she needs help showering and getting dressed. She still physically can walk but at a lot slower pace. Also this summer, she started to wander and can’t walk by herself anymore because she gets lost. I’ve had to secure our doors with alarms and locks to keep her from leaving. This doesn’t happen often though. I intend to keep her home as long as I can but plan B is a certified nursery facility. As everybody previously stated, everyone advances at a different pace, but I’m thinking with my DW she is closer to the 4 -7 years after diagnoses.
My advice to you is to read all you can about this disease and definitely use this feed as a great resource from fellow caregivers who totally understand what you are going through.

blacksparky

Also I forgot to mention for you is to get all your legal paperwork completed while your LO can still make decisions. If you haven’t contacted an elder law attorney, definitely worth the money to help you get everything in order.

BPS

My wife diagnosed about nine and a half hears ago at age 62. She was pretty early stage. She did pretty good for a while but slowly declined. She has not driven in over four years. That was longer than she should have. She willingly gave up her license after having two small accidents. She hasn't been able to manage her medications for four years or cooked in three years. She is late stage six and has been in MC for 16 months after having a stroke.

cdgbdr

Great advice about the paperwork. We had ours done 8/15 last year. He has steadily declined since then.

dayn2nite2

My mom had symptoms/events around 60, was not diagnosed until 65, died at 70 in mid-stage 7 (almost the end anyway) after having a heart attack.

Bill_2001

Hi Jehifer,

I have long given up on a calendar timeline. I use the 7-stage model for Alzheimer's and dementia to help me plan and cope with behaviors and expectations. Every dementia patient is different. Early into this disaster, I would never had dreamed she would go 9+ years with no end in sight. Sadly, there is no reliable way to predict progress in months and years, but the Staging model works well. As others on this site will attest, our loved one may progress quickly or at a tortuous slow pace.

Instead of reconciling with a calendar (which really has no meaning here), my wife's symptoms place her well into Stage 6. With that knowledge, I can plan and manage her as best I can. All I can hope for is that the next stage will not last long.

By the way, I usually call Stage 4 "The Cliff" or "The Wall." This is the stage when caregivers panic and know something is terribly wrong, and are searching for help.

Love Bill_2001

Stages listed below are from the site: Understanding the Seven Stages of Dementia - NCCDP

Stage 1: No Cognitive Decline

At this stage, there are no noticeable symptoms. The individual functions normally and shows no signs of memory loss or cognitive impairment. This stage is often identified retrospectively.

Stage 2: Very Mild Cognitive Decline (Age-Associated Memory Impairment)

Subtle memory lapses may occur, such as forgetting familiar words or the location of everyday objects. These changes are generally not detected during medical examinations or by family and friends.

Stage 3: Mild Cognitive Decline (Mild Cognitive Impairment)

Individuals may experience increased forgetfulness, slight difficulty concentrating, and challenges with word-finding. Friends and family may begin to notice changes. Clinical tests may reveal measurable deficits. This stage typically lasts 2–7 years (Alzheimer’s Association, 2024).

Stage 4: Moderate Cognitive Decline (Mild Dementia)

At this point, a formal diagnosis of dementia is often made. Symptoms include clear-cut memory loss, trouble managing finances, disorientation to time and place, and difficulty performing complex tasks. Patients may withdraw socially due to increasing awareness of their cognitive deficits. Duration can range from 2 to 4 years (Reisberg et al., 1982).

Stage 5: Moderately Severe Cognitive Decline (Moderate Dementia)

Assistance with daily activities becomes necessary. Individuals may forget personal information such as their address or phone number and may become confused about time or location. While they can usually still identify close family members, memory gaps become more pronounced.

Stage 6: Severe Cognitive Decline (Moderately Severe Dementia)

Memory difficulties worsen considerably, including forgetting the names of spouses or caregivers. Individuals may require help with dressing, bathing, and toileting. Personality changes, delusions, compulsions, or agitation may emerge. This stage often lasts about 2.5 years (DeFina et al., 2013).

Stage 7: Very Severe Cognitive Decline (Severe Dementia)

This final stage is characterized by loss of verbal abilities, inability to walk or sit without assistance, and total dependence on caregivers. Individuals may lose the ability to smile or hold their head up. Life expectancy at this stage varies but often ranges from 1 to 2.5 years (Mitchell et al., 2009).