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I’m so frustrated and scared

Abby627
Abby627 Member Posts: 25
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My DH has been doing fairly well but the last week he’s really failed. He had ear surgery and ever since has been so confused with delusion after delusion. He wet the bed last night for the first time ever and is refusing to wear depends tonight. He says he doesn’t need it. Can anybody suggest anything for tonight and also what the next step should be for meds? He’s been on Seroquel for several months and it’s been working great but all of a sudden he’s just off his rocker! Any help would be so appreciated.

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  • tonyac2
    tonyac2 Member Posts: 66
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    Sorry I can’t be of much help. The only thing that comes to mind is put a barrier (pee pad) under the fitted sheet on his side of the bed to help with the mattress. I know from experience my DH will not cooperate if he’s set against what I’m asking. Quite often I walk away and try again later. I don’t have enough experience with meds, so can’t help with that. I do see though quite often people recommending anti-anxiety meds. I’m going to look into those for my DH. Sorry you’re going through this.

  • SDianeL
    SDianeL Member Posts: 2,050
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    there are many posts on this forum about making the bed for incontinence. A mattress protector that the mattress slides in and zips shut to protect the sides of the mattress. 2 pads. One under the fitted sheet and one on top. I got the larger ones. To get him to wear depends some have replaced all their LO’s other underwear with depends. Get the ones that look like men’s underwear. You can search this forum at the top of the page for bed, etc and see other tips. I would talk to his doctor about his meds be sure to tell the doctor all the new behavior and that it started after his surgery. If he had anesthesia it could have caused a progression. If so, he may or may not return to his baseline.

  • BPS
    BPS Member Posts: 331
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    My wifes incontinence started out only being occasionally, so I got some nice incontinence underwear for her and put them in her drawer along with her regular ones and slowly removed the regular ones and she just wore what was in the drawer. it was never discussed it was just what was in her drawer so she wore them. She was pretty easy to care for except for her delusions until she had a stroke then it was to much for me at home and she moved to memory care.

  • Chris20cm
    Chris20cm Member Posts: 85
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    Could it be the Seroquel dosage needs to be increased? Our PCP recently upped the dosage for DW in stage 6, and it started helping immediately.

  • Carl46
    Carl46 Member Posts: 1,140
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    I would tell his doctor what is going on and see what he suggests with regard to meds. Unfortunately, anesthetic often makes dementia worse.

  • midge333
    midge333 Member Posts: 565
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    He may have some delirium from hospital/anesthesia/change in routine. It may be transient. That said, he may need his seroquel dose increased. It took nearly a year for the geriatric psychiatrist to find the optimum dose of seroquel for my DW. The dose would be increased and it would work for a while. Once she was on the optimum dose, she has not required any dosage increases (5 months so far).

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more