Recently diagnosed

sue783

I was diagnosed by a neurologist a few months ago The only testing I s were 2 EEG‘s one in office and a 2 day one at home and the psycologist with neurology which included variety of memory/skills testing. After that she said I had mild cognitive and she thought it was probably Lewy Body. Suggested driving test and sent me home. I was scared, I felt alone and started researching everything I could find. I am 71, single and work a full time job 4 days (12 + hours a day) and I supplement my income selling online and as a vendor in a local vendor store. And draw social security to live. I was panicking! So I started looking for a new doctor that dealt with Alzheimer’s patients regularly and had for a while. It took a little while and I did. The first thing he ordered genetic testing and other bloodwork and a brain MRI ( it had been a few years since I had a brain mri). The mri is still 2 weeks away but my genetic tests showed 2 genes. I’m grateful for this Neurologist. But I have been overwhelmed and I don’t have a great support system while I figure out how I can afford to live without a job. But one of my other doctors suggested therapy and with her help I have found one that specializes in seniors and Alzheimer’s/ Dementia!
That appointment is in a month.
Is it normal to feel like you need to hurry to make your end of life decisions/affairs in order quickly? I can’t seem to stay focused on those issues.
Any and all suggestions are welcome and thank you

Dorse

Sue 783,

I'm sorry you are going through so much. I understand how you feel about such diagnosis. I was diagnosed with Alzheimer's 4 mo. ago, and to hear this was devastating for me. I know your job / financial situation just adds to the fear of all this unknown. We must try to stay in the present, and not think so much about the future as it's so unknown. That's true without the fear of alzheimer's, but alzheimer's is different from any other diagnosis I've ever had to hear. My heart and prayers go out to you. Try to fill your mind with the positive, etc. My faith in God does help.🙏

Watson1

sue783 im 2& something years into the alzy road. yes it is challenging but it can be a slow road so time will let you learn and adjust. its a new you so you need to get to know yourself ,watch, take notes, read of others journey there are some great fist hand books of the journey. its a new adventure it doesn't change all the things you like to do it just requires greater self awareness. you will be fine did i mention im 71 as well

Dorse

Thanks for sharing your experience with Alzheimer's, good advice.🙏