The pain of living with ALZ

clenno

Tonight was the hardest night so far. Which makes it the hardest day. Of the hardest week. Of the hardest month. Of the hardest year. So far. He forgot me for the first time. He promised he wouldn't, but I knew he couldn't possibly keep that promise. It just came so much faster than I was prepared for.

Biggles

Oh my I’m so sorry this disease is ghastly, it’s the saddest thing ever especially the first time they forget the person they live the most and who loves them.

Biggles

….. cont. sorry pressed the wrong button. (It should read the person they love the most and who loves them).
The first time my DH asked “who are you” my knees buckled under me, I dissolved into tears and I was sure my world had collapsed. Everyone is different but after a lot of garble words through tears, things like “I am your wife”, “we’ve been married for 53 years” etc etc my DH just moved on and accepted who I said I was, I moved on too and talked about how much I loved him and his mum and dad and how and when we got married. All very familiar stuff. I eventually accepted it as just another step in this horrible and hideous disease. It doesn’t make it any easier to accept or understand nor does it take the pain away. Stay on this forum read and ask questions and tell your of journey it all helps.

midge333

It was one of the hardest things on this journey. I knew it was coming but I thought that we had been through so much already that it wouldn't bother me. I was wrong. I made a latte every morning and brought to my DW at the MC facility. One day she met me in the hall and said "Are you the nice man that brings me coffee every morning?" Fortunately she still liked me but she had no clue who I was despite being married to me for 46 years. Dementia robs us of so much…

Kat63

So sorry you too have experienced this moment. It is and was for me the hardest moment in this journey for sure and the one you don’t forget. So hard to believe it has robbed my DH of any memory of our wonderful life and love for each other.

Jeff86

Maybe the most agonizing experience of the AD journey. I knew it would happen but was totally unprepared for how I would feel. It was devastating. I am so sorry.

SDianeL

so sorry. We know how you feel. It’s heartbreaking. Hugs. 💜

marier

Hugs and more hugs to you. So sad and heartbreaking!

eligius

https://alzconnected.org/discussion/comment/258137#Comment_258137

reminds me of my grandmother. Had dementia & died in ‘68. Used to visit her often when I was in college as she alwsys lived next door to us. One day she asked her son:”who is that nice boy that comes to visit me?” ( to be read with Ukrainian accent)