I am still waiting for the actual diagnosis

JimmyUSMC

I have a neurocognitive disorder and I'm waiting for my neuropsych testing so I can be diagnosed. This is very challenging and I was seeing if there is anyone out there who has or is going through this.

Any advice or stories would be great.

keep_hope_alive

What diagnostic steps have you gone through so far?

In my case it was a sleep disorder/stress/mental health/lifestyle issues. My brain mri, sleep eeg, Alzheimer’s blood tests came out normal. By the time I got the neuropsychiatric exam I had mostly recovered and could feel that I had. But I had to take major steps to change things.

I am still having a vascular issue investigated that could also be contributing but the process of seeing specialists and getting answers can be frustratingly slow.

JimmyUSMC

https://alzconnected.org/discussion/comment/258490#Comment_258490

Thank you for your response. I also feel a little better leading up to my neuropsych testing. It is coming up soon. I know what you mean with the slow answers. I can't wait to find out which neurocognitive disorder I actually have.

IngridS

It took me 3.5 years from when I first noticed memory issues and mentioned it at my primary doctor’s appointment, about a year after I retired from teaching at 59. Several months later I had my first neuropsychological exam. I was diagnosed with mild cognitive decline (MCD). Since then I’ve had several MRIs, dozens of blood tests, a sleep apnea test, and a CSF draw for a battery of tests. When a ViSITING doctor (my new neurologist, whom I only saw once Dec. ‘24, then my next two appointments were with her NP, was on maternity leave for September , so a visiting doctor read my chart and gave me my diagnosis at the age of 63 +9months.. So, the waiting game is horrid. I’m sorry you are going through that process. It teaches you lessons in patience and humility.

JimmyUSMC

https://alzconnected.org/discussion/comment/258578#Comment_258578

Yes. I can't wait to find out which neurocognitive disorder I have. Thank you for responding, and any advice would be welcome.