Can't sleep

nanasharon

I can't seem to sleep trying to wrap my head around the almost daily changes my DH is having with this disease. For the past 2 wks he had to be wheeled from the living room to the bathroom to the bedroom or he would fall. For the last two days he's been back to walking fine but is unable to understand or communicate. Went to bed tonight and he's talking again but struggling to stand again. It's just sad. I noticed this with him before. As soon as I think I don't have to worry, I'm reminded I do.

howhale

This disease throws curve balls only. As soon as we think we have a solution, another curve ball is pitched catching us off guard. My dear wife went from walking, to riding, to walker, to walking again. In fact, the couple of weeks before she passed she was walking to and from the living room, to bathroom, to dining table, with assistance. Then, on a Sunday morning she could not stand and never left her bed and passed seven days later. Right after we had made adjustments to the bedroom to accommodate her needs. Versatility, adaptability, flexibility, creativity, patience, are all attributes demanded of us as care givers for a loved one with this disease. I found sleep difficult, always on alert. I did finally learn to be grateful for the up, as long as it lasted, because a down was right around the corner. Come here and talk to us to relieve a bit of your frustration. We all have it or experienced it and just letting it out in this safe place can help. It did for me for sure.

annie51

Sleep seems like a luxury when caring for someone with dementia. Waking up means your mind begins to process random thoughts that quickly spiral into a heart pounding full on stress that’s difficult to get out of. No one can understand what this is like until you’ve lived it. I’m sorry I don’t have any sage advice except to recognize and feel joy, for even the smallest things, each day. Sometimes for me it was as simple as seeing a bunny eating the food I put out on my patio.🐰