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Leqembi Infusions

I am due to start my first leqmbi infussion next week. I am very hopefull it will be benificial as my dx was recent and I am currently displaying very few symptoms other than failry typical age related forgetting.

Comments

  • ScottyB1320
    ScottyB1320 Member Posts: 1
    First Comment
    Member

    My spouse has had the first three infusions of Leqmbi, and the MRI following the second infusion shows no ARIA or other changes, which was a huge relief to both of us. All the best with your course of treatment, and those MRI's will definitely keep your medical team on top of how you are doing throughout the program.

  • GEH
    GEH Member Posts: 80
    25 Care Reactions 25 Likes Second Anniversary 10 Comments
    Member

    I am about to take my 12th infusion of Leqembi next week. I have had little to no, negative reactions other than being pretty tired with a bit of digestive issues the next day. MRIs with "Aria protocol" after every two infusions were required for the first eight infusions. All MRIs showed clear. It's a bit hectic in the beginning with all the infusion, MRI appointments, followup Dr. appointments etc. but it does slow down as I do not show any more MRIs on the schedule and no follow-up Dr. appointments. (yay!!) So now it's just an hour or so at the infusion center every two weeks. Easy peasy. I feel less "foggy", my attention span is significantly better, I don't want to sleep all the time and I can follow conversations around a table again when socializing. Wishing you all the best. Keep us updated on your progress and how it's going for you.

  • Dorse
    Dorse Member Posts: 85
    25 Care Reactions 10 Comments 5 Likes
    Member
  • Dorse
    Dorse Member Posts: 85
    25 Care Reactions 10 Comments 5 Likes
    Member

    I am curious to know how the majority of people diagnosed with Mild Alzheimer's after MRI, Pet Scan, Neurological testing, etc. do well for a yr. after diagnosis or longer then start noticing subtle changes?? I was diagnosed July 14, 2025.

  • lfaust58
    lfaust58 Member Posts: 41
    10 Comments First Anniversary 5 Care Reactions 5 Insightfuls Reactions
    Member

    Hi, Dorse

    I was diagnosed Jan 27 2025. Started Lequebmi every 2 weeks in March. So far, so good. What mild symptoms I've had haven't gotten worse- in fact, I've noticed some degree of memory improvement.

  • fburckardt
    fburckardt Member Posts: 1
    First Comment
    Member
    Do you mind if I ask how old you are
  • lfaust58
    lfaust58 Member Posts: 41
    10 Comments First Anniversary 5 Care Reactions 5 Insightfuls Reactions
    Member

    Sorry about that. I'm 67

  • TwoInHand
    TwoInHand Member Posts: 14
    10 Comments
    Member

    My mother has been getting the infusions for about 13 months now. I was very concerned about the potential for brain bleeds since she has a history of TIAs. As scared and hesitant as I was, I have to say now that I am glad that she is getting them. Her condition has only mildly worsened over the last year. I think the Leqembi is doing its job. I also think she is getting excellent oversight at the hospital and from the geriatric psychologist she is seeing.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more