New to this whole thing

Cjcann

My husband was just diagnosed 4 months ago and we have been spending most of our time learning and trying to find every way we can do full progression or trying to get into clinical trials, we had so many plans. So many dreams.he is 62 and I will be 62 in the summer And after years together, we finally got married this past October a week before he was diagnosed. We're so scared that we are going to be able to do any of the stuff that we dreamed of would determined to try.

trottingalong

You can do it. Make your dream list, what comes first and what is easiest to begin with. Enjoy life to the fullest even while you are working on getting into a clinical trial. Our passion was our ocean fishing boat, spending time hiking with our dog in the redwoods and searching for agates on the beaches we live near. We ate out at our favorite places, visited friends and family and laughed. I always say one day at a time. It is overwhelming, especially in the early diagnosis stage. We also got our affairs in order, Power of Attorney for medical and financial.

blacksparky

Get all your financial and medical powered of attorney done and then enjoy your dreams that the two of you planned. The only difference is everything needs to be speeded up. Do all you can now and get that bucket list checked off. Everyone progresses differently so you may have years to enjoy or only months. I’m glad we completed our bucket list early as now my DW at the age of 56 can’t travel anymore. We take each day now and enjoy what we have even though she doesn’t know who I am now. I’m sorry if this post sounds negative but this is the nature of this terrible disease affecting all of us.

Michele P

https://alzconnected.org/discussion/75437/new-to-this-whole-thing

I am so sorry you are here with us. As other have stated, you can still live your life to its fullest and live your bucket list. First thought, you have got to meet with an Elder Law attorney and get your financial and legal documents in order while your husband can still sign legal documents. Get HIPPA forms signed with all of his doctors giving you access. You will have to take over all finances. Get a list of every account along with user names and passwords. Get log in for computer and phone. Call your financial advisor and tell him or she of the diagnosis. Ask if you need to move any assets. Set up so that you get a email when any money comes in or out of any of your bank or brokerage accounts. Put all accounts on automatic payment. Put TILE gps trackers on phones, wallets, keys, purse. It tracks the items and person through the Life 360 app. Get a plan b in the event something happens and you can’t care for your husband. Tour assisted living/memory care facilities and put him on a wait list with a refundable deposit. Call your car insurance company and ask if they will cover an accident with his diagnosis. Most will not. You can get sued for everything you own if he gets in an accident because he shouldn’t be driving. Read the book The 36 Hour Day. It will help you prepare for what is next.