Wishing you all a peaceful Easter
Our lives are not what we expected them to be but i wish you some peaceful moments today and the ability to find/make some positive memories with your LO's while they are still with us, regardless of how different they are now. Sending hugs and prayers of support to all of you.
Comments
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Holidays for me are so hard and I’m sad on those days. Pre Alzheimer’s we were the home that most times people and family gathered for these holidays throughout the year. I used to complain to my DW every time saying it was a lot of work but each time I really enjoyed it. At this time of my DW’s progression, we don’t host or even travel to other homes on the holidays anymore. She can’t handle traveling or any sort of big crowds or lots of conversations going on at one time. Holidays for the two of us are the same as any other day of the year. Just the two of us and our black lab with small visits from family occasionally. Sorry for venting here as I do wish you all a peaceful Easter Day. God bless you all.
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God bless you too! It's a tough battle for all of us. Today, I received text messages from my brother and sister with pictures of their holiday gatherings. It made me happy yet sad at the same time. I too had the exact feelings as you. We cannot visit. We really cannot go anywhere. I have my 50th high school reunion coming up in June but it's 3.5 hours away. My sister offered but I don't see my DW making that 3.5 trip. Venting is good.
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My wife's sister lives 4 doors up from us. They both were raised catholic and went to only catholic schools growing up. My wife was very devoted. Her sister puts on a good show. No visit. No call. This on the highest of holidays. If we see her more than once a week it's only by accident. What a phony. She told our helper the other day that her sister doesn't know her anymore. I guess that makes it ok in her small mind.
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This disease really lets us know who we can and cannot rely on whether family or friends. The Calvary is not coming. You got this with all of our help. Hang in there!!!
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I also wish everyone a peaceful and happy Easter. As hard, lonely and sad as it is for all of us I gently remind myself that nothing and no one stays the same. Our children have grown through the baby stages, teenager years, young adults and now middle age adults with their own families they are not the same as they used to be. We do not stay the same either, the change in our LO’s is more radical and definitely more difficult than we would like but changes in life are inevitable. We have just finished celebrating Easter. Our son, daughter in law and their 2 young children flew up for the Easter break. They thoughtfully booked a large apartment so we could have a special Easter lunch there and they hired an 8 seater car so they could give me a break from driving and they ferried us around. Our son took his Dad for a milkshake and driving for a couple of hours and I went to the pictures with our D in L and grandchildren, saw The Faraway Tree what a treat.
it was a tiring but delightful 3 1/2 days, took a lot of organising, care and consideration, I was stressed before they came but determined to try for the best and it was great. Don’t give up just be prepared for changes some good, some not so good, all of them sad, that goes without saying, we know it’s not going to get any better, but here we are, so hang in there. If you find you have no one else around to share, pack a simple sandwich sit under a tree or at the beach, play some music in the car and hopefully along the way you find some peace and joy. Thinking of us all.7 -
Yes! Happy Easter and peace to all the dear souls in this amazing group, and our loved ones!
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Belated Happy Easter to all in this warm supportive group.
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The last holiday thanksgiving I took husband to daughter house, It was when I found out he couldnt figure out going up only 3 steps, We struggled getting him in the house and did have a decent thanksgiving for a few hours but getting him down the steps to leave we nearly carried him down. Shocking the abilities that are lost so fast. Christmas they came to our home and we tried to enjoy as much as possible. Too much conversation and noise really rattled him, But us being aware would keep it to a minimum, And I would alway look at him and say something simple so he felt he was a part of us all, He always understood simple conversation, LIke the food is good, or silly little comments, So actually it was a pretty great day considering. He was not here for Easter, So I cherish those last holidays
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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