The end is near.

Big Papa2760

Apri 9th

I fell the end is near. They have padded bandages on her elbows now because she sits in a wheelchair all day and can't move. They try to move her hands and she won't let them. I fear she has given up. They told me today, that they have started turning her every two hours to prevent her from getting any more bed sores. I try to hold her hand I can feal her trying to move her fingers. Today was another non-verbal day. All she can do to communicate is move her head up or down to signal. How do you carry on? Part of me wants to go with her, but I know that she wouldn't want that. I have to stay strong for my 2 kids, 8 grandkids & 11 great grandkids. If there is a God, please help me thru this.

charley0419

I can’t fathom what your going through, keep the faith.

SDianeL

I’m so sorry. 🙏💜

jgreen

Prayers and hugs for you @Big Papa2760

marier

So sorry you are in this situation and going through this grief.

Chance Rider

{{{Hugs}}}. 💜

White Crane

My heart goes out to you and my prayers are with you and your dear wife.

RetiredTeacher

Continued prayers for you and your wife.

howhale

So sorry that you are going through this. It is more than heart breaking to watch your loved one endure this. Before I lost my DW last August, she could not communicate as we do. I learned and told everyone, caregiver included, that she does communicate, just in her way now and within her physical limits. If I got down to her level, face to face, spoke softly but loud enough for her to hear, she would look into my eyes, sometimes smile slightly or let me hold her hands. It was then that I knew she was still with me. As her mind faded, her heart did not and she would use every ounce of strength sometimes to let me know. At the end, there were actually a couple times she spoke to me, as clearly as ever, telling me "thank you for taking good care of me". Your wife trying to hold your hand is just that message. Look for those very sybtle signals. Relish each one. Yes, I too wanted to go with my DW as well. Frankly, here alone now most of the time, I still wish I could just go with her but I cannot. We have others to care for.

Big Papa2760

Thank you so much.

Russinator

((HUGS))

elainechem

There definitely is a God! My hubby died from EOAD six years ago. If it weren't for the Lord, I couldn't have gotten through it.

BPS

I am not quite as far along as you. My wife was diagnoses 10 years ago and is stage 7 and bedridden. She eats on her own most of the time but only with her fingers (rarely with silverware). When asked a question about if she wants this or that she don't know. She still tries to say things but usually can't find the words so she gives up. She has been in MC for two years and I go see her most days. She still recognizes me most of the time. I want this to be over. I don't care if it is her or me but I am in pretty good health and think she can still go for a long time just declining to where she will need to be fed and won't be able to communicate at all. I hate this disease for what it does to the person but also everyone involved.