Vascular and alz.
My DH has periods of being so close to normal at times except for some short term stuff. Its weird but it worries me more when he is in this stage because usually when he changes it's usually worse than when he started in the normal period. I don't know if that makes sense to anyone or if anyone has has noticed this.
Comments
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This is the most damnably awkward horrible disease partly because of what you have noticed. As with my DH with VD and Aphasia, our daughter said a year or so ago without the Aphasia you would think Dad was ‘normal’ sometimes. If you are lucky it’s a slow decline plateauing at various levels always downwards if your DH can remain in a good happy kind state with your help it’s a blessing. Understanding and cognitive thinking slowly decline but if you can move with him working in his space taking each step at a time kindly, slowly and gently it helps you to continue with their care and helps with leading a happy life. We no longer go out to dinner (unless it’s with our special Sailability group) but we go for picnics and bbq’s with our understanding family. He can no longer use the computer but he has a ‘fiddle’ drawer full of interesting things binoculars, gadgets, shackles, an old phone, and a compas which he pulls out fiddles with and I put them away for next time. It’s so hard, sole destroying and sad but try to find the joy and alternatives as you go with his ever changing state. Take care.
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I can have a perfectly normal conversation with my mom. We talk about the weather, grandkids, food, day to day stuff that doesn’t matter. Every now and then she starts to talkabout her wants, needs( perceived) plans for the future and her living arrangements. All of a sudden the dementia is very clear and obvious. Those normal conversations lull me in to feeling kind of normal, making things seem even worse when she start in on being perfectly capable of living on her own and making unrealistic demands. It’s kind of a roller coaster (not a fun one).
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It makes absolute sense. At times, at least in my situation, it almost seems like things are returning to “normal”, then a cognitive impairment (in my situation it’s forgetfulness sometimes impaired reasoning) that pulls me back to reality & reminds me that all is not well. It’s a strange disease & affects each person differently. Thanks for sharing!💜
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That's how it is here. DH has ALZ and vascular disease. There for a long time, he would have such long stretches of being "perfectly normal" that I almost forgot his diagnosis. But, those days are over now.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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