In praise of firefighters (again!) 2 big adventures in 1 wk (Long post)
Well forum mates, last week was super-eventful and my head is still reeling from all the twists and turns.
Thursday (I think it was?) DH almost choked to death and I was lucky enough to successfully save him. Then second-guessed whether I unthinkingly interfered in what he would have preferred (an exit strategy to the long goodbye of dementia). The unanimous assurances that my instincts were what everyone here who responded would do...meant so much. How crazy-making this disease is to even have to wonder, but I surely did. He was so helpless. It was terrifying. I was happy he is alive and he was pretty chill for the rest of the evening and really cooperative (I guess a near death experience will do that for most of us).
Well, what a difference a day makes. Friday, we were out and about running a must-do errand and I had no choice but to take DH since the HHA was a no-show last week, and VA suggested we change agencies after their response.
Sooo...after a few hours of back and forth, and FINALLY coaxing DH (nudging, physically "helping" him out the door with my body right behind his) we made it into the car. Buckled up, good to go. He really loves oldies on satellite radio but forgets that of course. Before long he was toe-tapping and singing along, clapping his hands at times and clearly enjoying himself. I went to the drive through for a favorite combo first, and then to do the quick, time-sensitive errands. (Bank first, then to the P.O.)
- Drive through food order- check!
- Drive-thru banking - check! Finished meals in the process and no choking at all
- P.O. - filled out the label and ready to go in...
DH did not want to go inside the P.O. with me, so I turned the car off, let windows down and ran in to pay the postage and get receipt. Luckily there was no line! And it took less than 5 minutes. (This day is going so much better than yesterday, I'm thinking gratefully). I could see the car but not really what was going on. He was still in it and that's all I was monitoring. I had my keys and purse.
The joke was on me. As I stepped back outside, I could see he had switched seats and was in the drivers' position, behind the wheel. Sigh. You all may know what's next. Thankfully he can't start my pushbutton car and I ALWAYS take the keys with me. But I stood in the street, just inside the open car door trying to convince him to get out and move back to the other side. Nothing doing. After an hour and a half of people having to go around us, trying to beg, borrow, almost cry (real tears), low-key threaten, and even joining him in the F-bombs at one point, trading insults with him (quietly), I threw in the towel.
Gave up and called the local firefighters. The rescue crew who has picked him up off the ground, carried him up a flight of stairs, and scooped him off the floor and into his bed twice before as a non-emergency service. I let them know we needed a different kind of assist this time. So, now you know: your local firefighters are likely skilled at prying even a remarkably determined PWD from behind the wheel, while assuring him they are "helping him" get back into his seat so he and his wife can go home for dinner. I thanked them. He said "she's not my wife". The firetruck pulled away. My neighbors surely wondered what all the excitement at the post office was that day. We drove home and by the time we arrived DH had forgotten all about it.
Not your typical TGIF activity lol. Unless you are a dementia caregiver that is. That was Friday. Saturday we did absolutely nothing. I decided I deserved that Sunday I cut the grass, the shrubs, and the outdoor extension cord ($25 unintended consequences of rushing to do neglected yardwork while DH napped). Monday?: I need a nap, a break, or a drink. Or all of the above! Thank you for reading my long-winded therapeutic writing. If I didn't write it down here sometimes I may not even believe it myself.
Bless our first-responders, though. They are skilled in putting out all kinds of fires, and treated my DH and our family with dignity in this impossible stand-off that could have gone really badly.
Comments
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The stress induced unintentional vandalism of our own stuff … yep, I’ve done that. At least the extension cord wasn’t too expensive. What a weekend you had. My only suggestion would be to get the drive thru food immediately before the non drive thru errand … but I know you’d be concerned about him choking alone in the car. Plus he could still switch places while you were gone.
I’m glad the firefighters came and helped you.
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QBC - Yes, I guess I will have to order a replacement cord for delivery. No more errands for me until a new aide is assigned.
I was so happy that he seemed ready to maybe lighten up on the housebound status, but now I think car outings with DH may just be a bad idea after all. Unless I get one of those seatbelt locks and have someone else to go with us, I can't leave him in the car alone again. After this, I worry now that he might just walk away when he realizes he can't drive off and leave me (which he was clearly prepared to do).
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WOW!!!!! Bless your heart BFW! I can’t imagine having to experience that! WOW! Thank heaven for firemen! They were a blessing to me and my husband also. I’m really sorry that happened. You truly amaze me. You are an incredible woman! Seriously! I hope the rest of the week is event free!
The last time my dad took my mom out in public was a night to remember! She sat down right outside the main entrance of a very nice restaurant and wouldn’t budge! A very large, very kind man came out of no where and sat down next to her. After a short conversation he got her to stand up and he put her in dads vehicle. Angels do exist, yours were firemen, ours looked like a professional football player. I’ll take either one!
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ButterflyWings, just when you think nothing else can go wrong... You have my sympathy for all of the hassle trying to get your DH out of the driver’s seat. But when you wrote that he told the firefighters, “She’s not my wife.” I just couldn’t keep from cracking up. I’m sorry but that remark was seriously funny. I bet even you laughed.0
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What a terrible tribulation; I am so sorry that this happened. Do you think it may be time to have your husband's dementia specialist reassess his dementia medications?
J.
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That is one crazy dementia adventure, Butterfly! Glad you both survived it, and yeah, our firefighters did us a few solids during my mom's adventure too! Including an incident where they wiped up blood and turned off the oven after taking the apple pie out while we were being taken to the hospital by ambulance. Ooph.0
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abc - Thank you. If I am amazing or incredible, well...it takes one to know one! You surely have earned that title as well, many times over. We are in really good company here in this forum with so many heroes and she-roes, just doing the best we can with the hand we are dealt. I actually felt pretty stupid at the time which was part of why I didn't just lay down on the sidewalk and have a tantrum of my own, or a good cry. As in, he is the one with an impaired brain - and I know it - so why would I have tried this in the first place!!!?? I was alternately talking to myself and then talking to him. Probably looked really silly to anyone paying attention. Haha
As I read your kind words I thought about the lyrics from one of my all time favorite bands, The Eagles - I wasn't wise or strategic in the moment, just "too tired to make it and too tired to fight about it...life in the fast lane, surely make you lose your mind!" Grace at just the right moment. Where would we be without it? You are so right about angels and miracles. I already believed this before AD, but have so much more evidence of it on this journey.
ImMaggie - You are right I really did get a kick out of DH's dry humor at that moment (though he wasn't joking lol). I'm always observing and analyzing what's happening with him though (I think we all do that to anticipate the next curveball) so it was a quick reality check that during the 1.5 hour standoff he had long since lost track of why he was in that seat with a death grip on the steering wheel, who I was, what he wanted to do, and how to make it happen.
But you know, a little over a year ago I would have been crushed by those words "she's not my wife"(when it first happened, I was). So, taking a page out of Lady Texan's book: I am grateful to have evidence of my growth on this journey. Acceptance that he often has no idea who I am, or our relationship, and humor in the midst of the stressful, embarrassing, potentially volatile situations that AD creates...I have learned these coping skills here and DH is helping me practice them every day (!).
Have a wonderful, hopefully uneventful week, you all.
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Jo C - Yes, we are looking at his meds. Got in with his Dr. on a cancellation today in fact. (Video visits are really a blessing. Covid had some positive outcomes at least.) We are also considering that maybe he's still adjusting to major (unplanned) med changes while on respite though it has been 5 weeks now so he "should" be back to baseline. Ruled out UTI early last week. So, signs point to this just being largely progression, and also confirmation that he does best at home. So...I need HHA help "soon", or need to stay put. The car is a trigger (like in mid-stages...thought that was behind us
Lickety - Yikes! Knocking on wood here. No bloody adventures here thankfully though we have had most of the other bodily fluids and you are right, the firefighters didn't bat an eye. That was the week he ended up starting hospice. Blood and apple pie -- the rescue crews must have such interesting stories to tell, with all they have to respond to. Too much excitement for me. And not everything turns out so well. Bless them for their commitment.
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BW… thank you for caring about us enough to share this “episode”. I hate to chuckle at your expense but thank you for the smile which I desperately need always!0
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BFW thanks for sharing. I also chuckled at "she's not my wife" but I do understand. You are helping me I haven't heard those words yet but they are closing in, I don't think they will hurt as much because of what I have learned from all the posts I read. I am thankful for the angels God sends in our lives. We all get a share of them just when we need them. Your drive sounds like one we would make, no bank that's a trigger, favorite food is a must, po is always a good one cause we must be sending cards to family that she loves to do, if only I could figure out what she is doing with all the stamps I keep giving her. I am learning 4 cards 4 stamps.0
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M&M - you’re so welcome, and do chuckle away! Made me laugh too (after we were safe & sound back home anyway and had a 24-hr recovery period (for me lol)). It really is a little hilarious the adventures we all get into thanks to our PWD LOs. If the episode ends “well” at least, which this one did.
Toolbelt- we do learn so much by sharing here, even if a behavior never pops up at my house, it lets me know it could— and also helps when I see the tips and workarounds of all our super CGs here. Come to think of it, I never even heard of a firefighters’ assist before this forum (except for cats in trees). So thankful for people caring enough to share their experiences, both struggles and wins. Hoping those extra stamps will turn up some day
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Butterfly wings you are a very amazing lady! There is no way we would ever learn anything about the real life experience shared here on this forum from a book. I too have to admit I had to laugh at the hour and half stand off (once we knew everything was okay). I could see myself just laying down in the middle of the street crying or screaming! I hope you find a good caregiver to help so you get sometime for your self.0
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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