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Good read on bvFTD

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  • Twin Mom
    Twin Mom Member Posts: 81
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    Thanks for the article.  We are dealing with bvFTD...sure wish this were our problem...always worth a try in having the already existing MRI re-read by a neuroradiologist.
  • Ed1937
    Ed1937 Member Posts: 5,095
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    Wishing you the best.
  • Twin Mom
    Twin Mom Member Posts: 81
    Seventh Anniversary 10 Comments
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    Thanks!  It is definitely a journey with lots of twists and turns.
  • Jo C.
    Jo C. Member Posts: 2,958
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    Oh my; now I wonder if that was missed on the multiple MRIs.  However, since my LO with bvFTD has died, too late. I always wonder if I missed things or failed to do something that should have been done, or worse; if I unknowingly did something in decision making that made things worse.  Will never know.

    Thank you for this interesting article.

    J.

  • Ed1937
    Ed1937 Member Posts: 5,095
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    Jo C. wrote:

     I always wonder if I missed things or failed to do something that should have been done, or worse; if I unknowingly did something in decision making that made things worse.  

    Jo, of course I wonder the same thing. If I had made one different decision, maybe she would still be here. But no guilt because I did what I thought was best. I don't lose sleep over it.

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Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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