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Siblings in denial

Hello all,

My two parents with brain change are my father in law, and my mother.

We live in Pennsylvania temporarily in my mother and father in law's house. Mom passed away three and 1/2 years ago. Dad is in memory care. We live here because my husband is closing Dad's business.

My husband's siblings (5) are in a mixed state. The two who live in the area want to give Dad a phone. They also want to get him hearing aids. He is 95 and has never worn hearing aids.

Here's the thing, the siblings don't seek help for themselves. They don't get educated about their Dad's situation.

Now, I am quite certain both of the above proposals will only lead to disruption for Dad and the phone will be quite disruptive for the family.

It's just hard. They don't seem to recognize their own grief, or have much self awareness.

They stay very, very 'busy'.

I just wanted to write for a few minutes.

Thanks for listening,

2 parents with brain change!

J

Comments

  • M1
    M1 Member Posts: 6,788
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    I would suggest trying not to engage too much in these family discussions. You are certainly correct that he won't be able to use a phone or hearing aids, either one, but the proof will be in the pudding and you may be better off holding your tongue. Money wasted, but it may be the price of peace in the valley.

    The bald fact of the matter is that the person with power of attorney gets the final say in caregiving decisions. It's good that he's in memory care, at least he's in a safe environment.

  • 2parents/brain change
    2parents/brain change Member Posts: 51
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    Thanks, I sometimes feel indulgent in how much I put into caring for myself, like getting a massage, etc. Then I find myself in this community and I don't feel guilty at all but responsible.

    The 'mind games' are tough. and Yes the one who wants hearing aids and phone for Dad is POA, go figure. The one who spends the least time listening to Dad!

    Cheers for the community of sane people!

  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
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    On the hearing aides… I found that, although my mom went through the process to get hearing aides herself, she didn’t need them. After moving mom to my state so I could care for her, I realized she could hear quite well. I deduced that it was her cognitive decline and poor comprehension that made it seem to be a hearing problem. Any answer was better than a dementia diagnosis. Also, mom eventually had no ability to understand or use hearing aides. May be something to think about for you and your siblings. On the phone…I don’t know what stage your dads dementia is, nevertheless, introducing a new technological device will likely be a fail. Many dementia patients get to a point that they don’t understand a phone they’ve used for years, much less something new to learn.

    So sorry for what you’re all having to deal with.

  • 2parents/brain change
    2parents/brain change Member Posts: 51
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    Thank you so much. I had not considered what may appear to be hearing sensitivity is really lack of comprehension or even a choice not to hear! I do think my father in law makes choices in that regard. I know chasing down hearing aids is not a 'patient centered' action but is based on my brother in law's need to try to 'solve the problem'. My husband I have decided to let it go and allow my brother in law to pursue the hopeless idea of hearing aids and/or a phone. Perhaps by taking these actions, my brother in law will have a clearer view of what is really happening with his Dad. It's sad to see the brother in law in such grief and denial. We just keep walking and do what we can.

    THANKS!

    J

  • TrumpetSwan
    TrumpetSwan Member Posts: 73
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    edited December 2023

    Hello. You say ... "It's just hard. They don't seem to recognize their own grief, or have much self awareness."

    I get that. I have that from own sibling and I only have one. Since mom and dad have been on their 'journey' for six years she has not changed at all.

    I think trying to get anyone else on the same page as you can continue to be a side-project that may end up only exhausting your time, energy, and goodwill. Ideally we would have the support of siblings all marching to the same tune. If we don't though, I can only suggest to just focus on yourself and what is best for you to do at any given time.

    It is ironic about the POA going to the one with no 'awareness'. Same here. My parents gave my sister all of that and they seem completely clueless that she is not up to the task. My parents have me on their HIPPA forms, but my sister has all else. I just figured there is not much I can change about it as it is my parent's choice and it will have to play out just as they planned, good or bad.

    I think part of the difficulty is realizing what we can and cannot change. Overall, take care of yourself and make your own wellbeing your priority.

  • 2parents/brain change
    2parents/brain change Member Posts: 51
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    Thank you. I took my time getting to this but really, really appreciate your response and I fully agree!

  • housefinch
    housefinch Member Posts: 457
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    I’m in a different situation but the dynamics have some similarities. My stepdad is PWD and my mom is his caregiver and very emotionally limited in her ability to accept his decline and its impact on their life. There are 6 adult children across the US with varying degrees of understanding, acceptance, communication skills, & emotional maturity. It is excruciating. You’re not alone.

  • 2parents/brain change
    2parents/brain change Member Posts: 51
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    Oh Thank you so much for the word EXCRUCIATING! The emotional immaturity of the oldest daughter on my husband's side is draining when ever she is present. It's really beyond anything I could ever imagine. My adult children are far more mature.

    When my mother in law was PWD, her spouse, my father in law, now in memory care was in complete denial. She passed away at home thank God. Then he mourned for 3 years and now he is in memory care.

    He could not even accept her passing. And she was blessed with a wonderful life.

    It's messy.

    Enough of my woes, when is Dementia/ Alzheimer's not messy?

    Thanks all

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more