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Frustration and denial

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  • trottingalong
    trottingalong Member Posts: 414
    Eighth Anniversary 250 Likes 100 Care Reactions 100 Comments
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    I do the exact same thing. I even take the blame for some things and just apologize. Saves so much grief.

  • M1
    M1 Member Posts: 6,788
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    What can you do? Just listen (or pretend to) and not respond with anything other than Hmm or Is that right? Sometimes it works to redirect with something like an offer of a snack, a TV show, a walk, an activity. Everyone loves to help, so tell him you need his help-and use those words specifically to get his attention, for something harmless like folding towels, sorting old coins, sweeping. My partner loved to vacuum and would do it repeatedly. But you are likely to continue to hear lots of repetition, and lots of confabulation of things that never happened.

  • charley0419
    charley0419 Member Posts: 368
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    Don’t let him drive !! There’s someone on group now haveing legal issues do to having accident.

  • efaheyparry
    efaheyparry Member Posts: 2
    First Comment
    Member
    > @joechsle said:
    > Hi, I’m new to this group and I was wondering how do other people cope with the frustration and denial that arises from oneself by living with a spouse with mild cognitive impairment. Communication has progressively declined. It’s like we speak 2 different languages and this sparks confrontations. He is in denial of his memory decline and I am in denial as well.
    > I feel as if my floor has been taken from my feet when I realize and know what is coming. I know it well because I’m a nurse and have cared for dementia patients for a long time. You would say well.. she knows how to deal with this, but no, it’s a total different ball game.



    How do I join a live group, to help me with my husband's onset of dementia?
  • efaheyparry
    efaheyparry Member Posts: 2
    First Comment
    Member
    How do I join a live group to help me with dementia. My husband was recently diagnosed with onset of dementia. I live in Rancho Codova, CA. I noticed a change in him a year ago but in the last couple of months I am seeing new symptoms. Thank You. Eileen Parry
  • M1
    M1 Member Posts: 6,788
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    Welcome Eileen. This is an old discussion, you'll probably get more responses if you start a new discussion.

    While there aren't live chat groups here, it's a very supportive group. Best I've found by far over the past three to four years.

    IIf you look to the right under Quick Links and Groups, there is one for new members with a lot of good information that is frequently cited here. Read a lot of threads and you'll learn a lot. Good place for advice and support.

  • fmb
    fmb Member Posts: 399
    250 Care Reactions 100 Insightfuls Reactions 100 Likes 100 Comments
    Member

    To be honest, this discussion forum is the best support group I could ask for. It's a great place for to get information, ask questions, or rage, cry and grieve.

    The Alzheimer's Association website has a support group search engine which may list something in your area. https://www.alz.org/events/event_search?etid=2&oo=false I have found that their listing is nowhere near all-inclusive, though.

    If you are looking for an in-person support group in your area, I suggest you contact local memory care facilities. Many of them sponsor dementia caregiver support groups. I couldn't attend any of the local dementia caregiver group meetings, but did find a local general caregiver support group sponsored by the hospice agency that takes care of my DH. One does not have to be using their services to attend. The group I attend meets once a month and is facilitated by a hospice social worker. At our most recent meeting, one participant is caring for her husband with Stage 4 cancer, one has a husband with Parkinson's, another's husband has unspecified dementia, and my DH has Stage 7 ALZ (with stroke damage and congestive heart failure). Despite the differences in our loved ones' diagnoses, we have all been a good source of information and support for each other.

    Best wishes for you on your journey.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more