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How did your LO with early-mid dementia adjust to moving to MC?

yearofthedragon
yearofthedragon Member Posts: 34
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Do you have a loved one who moved into memory care when they were still somewhat independent/early/mid dementia? What was it like moving them, did they adjust well? Did they make friends?

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  • harshedbuzz
    harshedbuzz Member Posts: 4,805
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    My aunt transitioned to MC in the middle stages of the disease. She was a childless widow, and her sister-guardian, who lived in a tiny condo and was still working, moved her to a very nice MC near where she lived.

    My aunt/WD adapted really well. She was one of those PWD who remained pleasant and became a favorite of staff. After years of living alone and isolated, she blossomed with a schedule of activities, socialization and a better diet than she was managing on her own. She was very friendly and even connected over the years with 2 male residents-- one she treated kind of like a kid brother and the other was more like an old married couple. She and the second gentleman died within hours of each other.

    HB

  • M1
    M1 Member Posts: 6,788
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    Our experience is probably the other extreme. My partner was early stage 5 when moved. She would not accept help at home (a large remote farm), was not consistently recognizing me, had started to wander the house at night, was overfeeding our animals, and threatened violence when i wouldn't let her drive. She was independent with ADL's at that point. It's coming up on two years in MC, and she has not adapted well. While friendly with staff, she has always been a loner and has not made friends among the other residents. She does not like group activities and spends most of her time in her room. Fortunately she has no sense of time.

    My take is that the group living setting works better for extroverts than for introverts. No surprise there, really.

  • machelriller
    machelriller Member Posts: 23
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    My dad is early/mid stage 5 and he moved in September. He needs prompting for ADLs but can do them himself. He also has really good social skills and can "fake it" in a lot of situations, which has made the transition hard for family and friends who only see him while "showtiming."

    He has adjusted really well. The move actually showed me how much my brother (who was his caregiver) was helping him and "scaffolding" him. My dad has no memory of the home he lived in for almost 40 years and just accepts that he lives at memory care now. He's made some friends, although the biggest challenge is that there aren't many residents at his level - most are more advanced. But the staff love him, and he participates in all of the activities. He loves the activities that I thought would be infantalizing to him, like balloon volleyball and singing along to "How much is that doggie in the window?"

    To M1's point, my dad is definitely extroverted and was lonely at home, and is a pleasant and easygoing person. The day of the move was awful and really hard, but then he just forgot about it.

  • CaliforniaGirl-1
    CaliforniaGirl-1 Member Posts: 136
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    It took time to adapt. My LO was very elderly and had lived alone accepting no help for many decades. Like a lot of people, at the beginning my LO spent most of their time in her room watching TV. It didn't help that she didn't remember how really lonely and isolated she was before at home. But she came out for meals and there were people she liked and didn't like which is stimulating in itself. But she did adapt and has made friends. Now, she is never in her room, preferring to hang out in the dining area and the TV room and even occasionally, participating in an activity.

  • MN774
    MN774 Member Posts: 13
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    yearofthedragon yes, terrible, and no (to your questions). Similar to Anonymousjpl123 I too worried that we moved my dad into MC/LTC too soon. I think that my dad is somewhere around stage 4, but also exhibits symptoms of stage 5 - he has not had a psychiatric evaluation yet. My dad is an extrovert, but like M1, he just won't go out of his room, make friends, or really interact - he's friendly to the staff, but has paranoia that the staff are keeping secrets and stealing from him. He has good days and bad days. On the good days I think that maybe we moved him too soon, but on the bad days I feel that we made the right decision. I've refrained from calling him lately (I am long distance from my dad) because he was verbally abusive the last two times I talked to him on the phone. I feel bad about not calling. He had expressed a lot that he wanted to go home and that he would "die in a week" if he didn't get out of that place. Those were very upsetting phone calls.

    I also wanted to ask the group: did you ever take your LO to visit their home at some point? What would one do if they did bring their LO to visit their home and then they refused to go back to LTC? I think about being able to bring my dad to visit, but very very worried that we would not be able to extricate him from the house.

  • M1
    M1 Member Posts: 6,788
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    We have only left the MC campus for two doctor's appointments in two years. I would love to take her out but would have difficulty getting her back if she decided to act up. Some residents go on scenic drives in a company van, but my partner would find that claustrophobic and painful to her bad back. I do not think that going home is a good idea, period. YMMV depending on stage.

  • Anonymousjpl123
    Anonymousjpl123 Member Posts: 731
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    @nazai those calls are so distressing. I still get them from my mom sometimes, I find that when I get there, like last night, she’s usually in such an upset state about everything it’s not really about where she is.

    Like if I say where would you want to go, the answers are not logical at all. Sometimes I think if I still lived far away it would be easier, sometimes I think it would be harder.

    I agree with @M1 it depends on the stage. My mom is highly extroverted and needy, so visits home have helped. It is getting harder. I asked staff and they said it really just varies based on situation. I’m trying to do it while she is in stage 5. That part is so very hard.

  • CaliforniaGirl-1
    CaliforniaGirl-1 Member Posts: 136
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    Last year I took my LO out to lunch sometimes, always with another person and I also worried about what if they wouldn't go back in. It went ok. But this year their condition has evolved and I may bring food in, instead.

    I would not take them back to their house. It wouldn't really accomplish any positive purpose for them and is likely to be distressing and cause upheaval. I can understand why you are tempted.

    As far as your dad is concerned, ask yourself If you do take him to see his house and he recognizes it, what outcome for him do you hope will come from it? Is it likely to lead to something positive or distress?

  • JeriLynn66
    JeriLynn66 Member Posts: 962
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    I’m about to enter this phase with my 98 year old Father in law.

  • MN774
    MN774 Member Posts: 13
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    Thank you for your insights - this is very helpful. Thoughts of having my father visit the house were prompted by my thinking that maybe we acted too soon to place him in LTC, but his condition seems to have progressed dramatically in the last couple of months since being placed there. I think you are absolutely right about what outcome could come out of visiting the house? I think it would cause more distress.

  • JifKY
    JifKY Member Posts: 3
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    I feel like we are the same experience as my LO has the good days and bad days and has been an introvert and living along for 20 years before moving her. Unfortunately the AL start was good and then full MC was need as she kept trying to leave and packed all her belonging every day. Then got mad when the staff put back in her room as she threw them all outside her room in the hall. We took her out and doing in home care now but it has good and bad days.


    main then is she cannot get out but she keeps trying. I feel for everyone. Strength to all on this.

  • yarnball
    yarnball Member Posts: 18
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    I came here just now because I'm at the place where Mom has to go to a A/L or M care and it is just so painful to make the decision. I think she will hate me but she is not safe in her home. And will not accept someone coming in. I know logically it is the correct thing to do but, man, it's a super hard HEART thing! My support goes out to all of you. It IS helpful to read that for some of you the move turned out well for your LO.

    And, I feel guilty because I do not want her to live with us. We tried that twice before when she was released from hospital and both times it ended badly after about a month. And, I want to live my life also.

    Have a day filled with peace.

  • Anonymousjpl123
    Anonymousjpl123 Member Posts: 731
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    @yarnball I am so sorry you are going through this! I understand the guilt because I am the same: my mom desperately wants to live with me and can’t because I live alone (with fur babies) and can’t take care of her.

    If you have tried twice before you really know.

    Now, that said, I understand the agony about Al versus MC. My mom started in AL and had to move to MC and now desperately wants to move back. I’ll meet with the staff and see what they say in terms of her living there with an aide. But truthfully, she was really hard to deal with my whole life so this is just a continuation.

    All of this said…I have zero regrets about placing her versus moving her home. Some facilities, like mine, are open to moving residents between floors - they moved her to MC in a hot second when she needed it, and will likely be open to moving her again to AL with an aid of they think it is even possible (which it may not be). It is still utterly relentless and exhausting for me but without this level of care, I’d be done.

    they don’t hate us. They hate the disease.

  • LauraG34
    LauraG34 Member Posts: 5
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    How long did it take? We are 3 weeks into AL and my LO just wants to go home.

  • M1
    M1 Member Posts: 6,788
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    Hi Laura. Three weeks is the tip of the iceberg, though I'm sure it feels like forever. It is very variable. Some never seem to blink, and some never adjust. You'll cringe when i tell you I'm at two years with very poor adjustment. But we seem to be outliers.

  • psg712
    psg712 Member Posts: 459
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    The weeks before moving mom were harder for both of us than the actual adjustment to AL. I had talked a few times with her about wanting her to be closer to my home, so that we could spend more time together and I would be nearby for anything that came up. But I don't think she took me seriously until we started packing. Then she had a fit. Started calling everyone in her address book to let them know she was being taken against her will to another state. This resulted in more time and stress for me during the short window of time I had to get her packed, find all the necessary documents, close up the house, etc, because a number of long-distance friends and family called me requesting explanation of what was going on. She had showtimed so well on short visits or phone calls that most had no clue she had dementia!

    So I was dreading the transition at AL. She was at my house for a few days, kept asking whose place we were visiting even though she'd been here many times in the 20+ years that I had lived in this house. When she got to AL, she took the activity schedule that she received each day and treated it like a work or school schedule. The activities were assignments that she had to complete, sometimes grumpily but the structure was great for her. She was able to keep her beloved cat, which went a long way toward the adjustment. She in fact adjusted WAY better than I had expected. She asked a couple times about her house, then appeared to have forgotten about it.

    The recent transition from AL to MC came after a hospital and subsequent rehab stay. She is very confused, does not know what we are talking about if we mention AL. No longer recognizes residents she knew who have also moved to MC, or staff who knew her there. The environment and activities in MC are exactly what she needs at this point in her dementia progression. The cat was rehomed while she was in rehab, and she has not spoken of him or asked any questions. Both sad and a relief that he seems to be gone from her memory. She is passively accepting of the changes. The fact that she put up almost no fight is yet another reality check for me on how far gone her mind is. The woman she was before Alzheimers would never have allowed me to impose all of this on her!

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more