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Live in NJ whom do I contact to find out what I’m entitled to for home care visits in future?

charley0419
charley0419 Member Posts: 406
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in Caring For a Spouse or Partner

I f don’t want someone NOW to sit with wife as at this point would really put over edge. Has anosognosia bad. But how’s this work as should I contact an agency and just belong until I need them. ? Need help on this one. Don’t need Medicade at this point as she’s staying at home. This is NJ

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  • JeriLynn66
    JeriLynn66 Member Posts: 964
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    Charley, if you have insurance/long term care coverage you may be entitled to home care or companion. Medicare only covers nursing or therapy care if the need is for acute care either after hospitalization or if recommended by your loved ones physician. It does not include or cover sitters/companions.

    Have you seen a CELA? So many concerns about care and finances would be answered for you.

  • charley0419
    charley0419 Member Posts: 406
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    https://alzconnected.org/discussion/comment/199600#Comment_199600

    I did contact and they are needed when things really go down hill. That’s when you have to do whatever they do to get your funds down and other things. I’m talking about getting foot inside some organization that can help later on

  • Ed1937
    Ed1937 Member Posts: 5,095
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    Charlie, I don't know of any organization that will help with that. Unfortunately Medicare will not help either. If you happen to find something to help, please let us know. I'm sure there are plenty of people who could use the break, and don't know how to get it.

  • charley0419
    charley0419 Member Posts: 406
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    I think your right but will look into

  • M1
    M1 Member Posts: 6,788
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    You might try your local Council on Aging to see if there are any programs of help in your area. You have been told this before, but I'll say it again: it is NEVER too early to consult an attorney and start your planning. Just like harshedbuzx' wakeup call about something happening to you, you never know when things might turn on a dime, and you need to get your ducks in a row. If she is not already qualified for Medicaid, you won't be "entitled" to any benefits at all. It will just be a matter of what you can pay for. Home care is quite expensive.

  • Jeanne C.
    Jeanne C. Member Posts: 843
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    Charley, I agree with M1. It's never too early to meet with a CELA. I'm so relieved that I did it early. They helped me manage finances to get him qualified for Medicaid and that means home health aides, meds, docs, incontinence supplies, even meals. They paid for daycare, too. I didn't think we were ready for a lot of it, but things changed quickly. And because we went as soon as we could to a CELA, he was able to sign off on everything and I didn't have to go the guardian route.

    That being said, you can hire aides through an agency. It's not cheap (35/hr here in DE). Definitely check with your local council on aging. There may be additional services.

  • charley0419
    charley0419 Member Posts: 406
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    I guess my question is once you get any Medicade that’s when clock ticks for 5 yr look back and for you to have limited funds? Correct?

  • jfkoc
    jfkoc Member Posts: 4,051
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    Google;

    Area Wide Aging....Alzheimer's association...Medicaid....Power of Attorney/Durable Power of Attorney

    Look at your last tax return

    There is also a lot of information here. Go up to the top of the page and start at home. The more you know the better prepared you will be for the future

    I also suggest that you find a way to get a break. In order to bring someone into the home you will have to come up with a win win approach and please do not think that being direct will accomplish.

    One more suggestion.... simplify everything! That means clothing, bathing, cooking, cleaning.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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