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Haladol?

Rae4
Rae4 Member Posts: 16
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My mom was diagnosed with mild to moderate AD/VD two years ago. In July of 2022 she fell in the parking lot and fractured her pelvis prompting a move to assisted living. Her dementia progressed pretty quickly after her fall and move. She started thinking her stuffed dog was real and that it died. She cried for days over the death of this dog. Her NP put her on Seraqual which helped tremendously. She still thought the dog was real, but it was no longer dead so the tears stopped. Fast forward a year and now she doesn’t recognize this dog and was given a doll by the staff that she now thinks is a real baby. Well most of the time it’s a baby, sometimes she calls it a dog. Often she forgets her words and says something bizarre.

I would now put her at stage 6 and she is refusing meds and getting very angry as she says she has never taken pills and we are misinformed. This woman has been taking meds daily for 65 years! It’s so crazy! She is convinced we are moving her and keeps folding and stacking her things ready to place in moving boxes. She absolutely refuses a shower and brushing her teeth. In fact one time she used her blue toothpaste as hair gel. What a mess!

Anyway, we decided to have her evaluated for hospice yesterday and she was accepted. They are suggesting we try giving her haladol in liquid form as a way to get her to be less agitated. What do you think? I don’t want her to be a zombie, but do want her to be calm. This is so hard!

Sorry for the long ramble! I’m so overwhelmed as all the decisions fall to me.

Comments

  • jfkoc
    jfkoc Member Posts: 3,880
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    edited March 11

    I vote no on the Haldol. I think drug decisions need to be made by your mother's neurologist. I am willing to bet that the Dr ups the Seroquel before starting Haldol. I suggest you go to a site like drugs.com to read about drugs for you rmom

    The facility should be trained as to how to administer prescriptions.. As to administrating, crushing into food or getting liquid are possibilities. Your pharmacist can quide you on this. "Time for your pills" need never be a conversation ever again.

    By the way, nothing you have posted goes outside the box for a person with dementia so please do not over worry what is going on except the lack of training of the facility staff and your hospice.

  • M1
    M1 Member Posts: 6,788
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    Haldol (generic halooeridol) is an older antipsychotic that Seroquel and generally not as well tolerated with more side effects. I would agree with upping the Seroquel first.

  • Anonymousjpl123
    Anonymousjpl123 Member Posts: 698
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    My mom has symptoms not unlike yours (not the dog, but the fast progression, stacking and moving her things, and sometimes paranoia making it hard for staff. Does it get worse in the afternoon? That may be sundowning. My mom took seroquel and it helped a lot. She is not a zombie, still has these moments, but she’s not as upset and anxious all the time.

    I am so sorry you and your mom are going through this. It is not easy or pretty. Ask about seroquel. And focus on her comfort - I love the doll idea, maybe a robotic pet might be good for her. It sounded so crazy to me when someone mentioned it, but as my mom progresses I see that one day it may be helpfUl to her. I hope you both find some relief soon.

  • Rae4
    Rae4 Member Posts: 16
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    jfkoc and M1, I will definitely have further discussions with her medical team. Thank you for your suggestions and sharing your knowledge.

  • Rae4
    Rae4 Member Posts: 16
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    You are so right…this is not easy or pretty! We did try the robotic dog but had to keep it turned off all the time. The dog was real to her and she couldn’t understand how to turn it off, so it barked or moved all night long keeping her awake. Flipping a switch doesn’t seem hard to understand but for her it was. After about a year she forgot about the dogs and attached to the doll. It’s very interesting how she is with the doll. She is like a young child who sleeps with, talks to, and try’s to feed her baby. She is always concerned the baby is cold so wraps her up in a blanket like a newborn.

    Thank you for your compassion and know that I hope the best for you and your mom.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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