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Dhsinchuk
Dhsinchuk Member Posts: 1 Member
in I Am a Caregiver (General Topics)
Hi, I’m very new to this. My sister has dementia. Her long term partner passed away in January in New Jersey. I didn’t know how much decline had happened until his passing when she could no longer live alone. I found a Memory Care facility here in RI where she is living and my family and I visit often. Sometimes she seems happy and at others I’m not so sure. I know she is settling in but she’s feeling her loss of independence and I can only imagine how hard that is. Your thoughts are appreciated. Thank you.

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  • pookabera
    pookabera Member Posts: 71
    25 Care Reactions 10 Comments First Anniversary 5 Likes
    Member

    Hi - wanted to add some support ❤️ I found a lot of solace here and by reading up on dementia. I find comfort in feeling like I'm being helpful, so being knowledgeable in order to advocate for my dad and do my best to keep him comfortable through his progression was important to me.

    The book I read the most is "The 36 Hour Day", I highly recommend it, it has a lot of good educational info about types of dementia, the progression, common behaviors, etc. I also read up on the Validation Technique which is a way to navigate their agitation/delusions in a way that can be helpful rather than breaking the #1 rule of interacting with dementia (don't argue with them).

  • forbarbara
    forbarbara Member Posts: 204
    100 Care Reactions 100 Likes 100 Comments Second Anniversary
    Member

    Welcome. Like others, I’m sorry you’re on this journey but glad you found us.

    Have you had a discussion with the facility about what you can expect as your sister’s disease progresses? This can help you understand how they approach it. Be sure they understand when you want to be contacted, and you know who to contact when you want to check in on your sister’s condition, etc

    I highly recommend getting to know some of the staff closest to your sister — the CNA’s who help with hygiene and daily living. In my case, the activities director is also very helpful. And I have to say that the nurses - not so much.

    I hope your sister continues to settle in and you and your family find a routine that gives comfort and support to her and you.

  • jfkoc
    jfkoc Member Posts: 4,960
    Legacy Membership 1,000 Likes 2500 Comments 250 Insightfuls Reactions
    Member

    Please also take into consideration that she is grieving and that shw has been moved. Both of those things will take a toll.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

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