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Is there an open forum for people to speak about their experiences?

Jenanddad
Jenanddad Member Posts: 1 Member
in Caring for a Parent
Hi there, I’m Jen and my daddy has vascular dementia after suffering a stroke last year. I would like to find a place where I can talk with people in similar situations so we can share our experiences and support each other. Does anyone know where I can find such a forum please?

Comments

  • harshedbuzz
    harshedbuzz Member Posts: 4,479
    Seventh Anniversary 1,000 Likes 2500 Comments 500 Insightfuls Reactions
    Member

    @Jenanddad

    Hi and welcome. I am sorry for your reason to be here but pleased you found this place.

    Are you looking for a real time chat room or would a discussion board like this do? There also smaller support groups in many communities that meet in-person or virtually. I found the combination of a IRL monthly meeting and this place. Both were great for information, and support. The IRL meeting was superior for local resources like day programs, MCFs and even things like understanding barbers. This place was great because there is a greater breadth of experiences, and the door is always open.

    Specific to this site, I find the I Am a Caregiver (General Topics) board more heavily trafficked than this one so you might get more attention there as all kinds of folks post there.

    HB

  • mariehb
    mariehb Member Posts: 3
    First Comment
    Member
    Hi! My mom has vascular dementia, she was recently diagnosed ( about 6 months ago) feel free to chat.
  • dtillery
    dtillery Member Posts: 1
    First Comment
    Member
    My husband has become very mean and delusional lately and everyone says not to argue I am very hurt and frustrated. Is there some medications anyone may know about which may calm him down and would be safe for him to take.
  • mariehb
    mariehb Member Posts: 3
    First Comment
    Member
    https://alzconnected.org/discussion/comment/214293#Comment_214293

    I’m not sure as I’m new to this too, but my mom’s neurologist recommended a few meds, one was an anti anxiety and one was a med specifically to help slow down the symptoms of dementia ( I think). Her insurance didn’t cover the second one and she was too dizzy on the anti anxiety so right now we are at a standstill.

  • mariehb
    mariehb Member Posts: 3
    First Comment
    Member
    https://alzconnected.org/discussion/69709/is-there-an-open-forum-for-people-to-speak-about-their-experiences
    https://alzconnected.org/discussion/69709/is-there-an-open-forum-for-people-to-speak-about-their-experiences

    Hi! My mom has vascular dementia, she was recently diagnosed ( about 6 months ago)

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

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